Neglect of Psychological Care for Children with Cerebral Palsy and Their Families and Its Impact on Their Occupational Engagement in Saudi Arabia
- PMID: 39202497
- PMCID: PMC11356549
- DOI: 10.3390/medicina60081216
Neglect of Psychological Care for Children with Cerebral Palsy and Their Families and Its Impact on Their Occupational Engagement in Saudi Arabia
Abstract
Background and Objectives: Many children with (CP) and their families in Saudi Arabia struggle emotionally. Unfortunately, there have not been many studies conducted on how to help them with these challenges. This research aims to bring attention to this gap and to explore how a lack of proper mental health care might affect these children's ability to participate in everyday activities. Materials and Methods: In this cross-sectional descriptive study, a survey was conducted between August and October 2023. A total of 300 parents of CP children from Saudi Arabia participated in the study. The impact of psychological care negligence on the occupational engagement of CP children and their families was assessed by designing a valid questionnaire. Results: A total of 300 parents of children with CP participated in this study. The majority of the sample, 71% of parents, said that their children did not receive any psychological care, and 59.7% of the participants said that their children did not even receive a referral to a psychologist. However, 60.3% of parents of children noticed a significant decline in the occupational performance of their children, and 65.7% predicted an improvement in their children's performance with future psychological care. Conclusions: It is clear that there is a lack of awareness about the importance of mental health care for children with CP in Saudi Arabia. This lack of care hinders these children and their families' occupational engagement and social participation.
Keywords: Saudi Arabia; cerebral palsy; mental health care; occupational engagement; parents; support.
Conflict of interest statement
The authors declare no conflicts of interest.
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References
-
- Blair E., Cans C. The Definition of Cerebral Palsy. In: Panteliadis C.P., editor. Cerebral Palsy. Springer International Publishing; Cham, Switzerland: 2018. pp. 13–17. - DOI
-
- Centers for Disease Control and Prevention Data and Statistics for Prevalence and Characteristics of Cerebral Palsy. [(accessed on 25 January 2024)];2021 Available online: https://www.cdc.gov/cp.
-
- Mushta S.M., King C., Goldsmith S., Smithers-Sheedy H., Badahdah A.-M., Rashid H., Badawi N., Khandaker G., McIntyre S. Epidemiology of Cerebral Palsy among Children and Adolescents in Arabic-Speaking Countries: A Systematic Review and Meta-Analysis. Brain Sci. 2022;12:859. doi: 10.3390/brainsci12070859. - DOI - PMC - PubMed
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