Co-design of a voice-based app to monitor long COVID symptoms with its end-users: A mixed-method study
- PMID: 39257875
- PMCID: PMC11384972
- DOI: 10.1177/20552076241272671
Co-design of a voice-based app to monitor long COVID symptoms with its end-users: A mixed-method study
Abstract
Background: People living with Long COVID (PWLC), which is still a poorly understood disease, often face major issues accessing proper care and frequently feel abandoned by the healthcare system. PWLC frequently report impaired quality of life because of the medical burden, the variability and intensity of symptoms, and insecurity toward the future. These particular needs justify the development of innovative, minimally disruptive solutions to facilitate the monitoring of this complex and fluctuating disease. Voice-based interactions and vocal biomarkers are promising digital approaches for such health monitoring.
Methods: Based on a mixed-method approach, this study describes the entire co-design process of Long COVID Companion, a voice-based digital health app to monitor Long COVID symptoms. Potential end-users of the app, both PWLC and healthcare professionals (HCP) were involved to (1) understand the unmet needs and expectations related to Long COVID care and management, (2) to assess the barriers and facilitators regarding a health monitoring app, (3) to define the app characteristics, including future potential use of vocal biomarkers and (4) to develop a first version of the app.
Results: This study revealed high needs and expectations regarding a digital health app to monitor Long COVID symptoms and the readiness to use vocal biomarkers from end-users. The main expectations included improved care and daily life, and major concerns were linked to accessibility and data privacy. Long COVID Companion was developed as a web application and is composed of a health monitoring component that allows auto-evaluation of symptoms, global health, and scoring relevant symptoms and quality of life using standardized questionnaires.
Conclusions: The Long COVID Companion app will address a major gap and provide day-to-day support for PWLC. However, further studies will be needed following its release, to evaluate its acceptability, usability and effectiveness.
Keywords: Long COVID; digital health app; mixed methods; remote symptom monitoring; vocal biomarkers.
© The Author(s) 2024.
Conflict of interest statement
The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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References
-
- Zhang H, Huang C, Gu X, et al. 3-year outcomes of discharged survivors of COVID-19 following the SARS-CoV-2 omicron (B.1.1.529) wave in 2022 in China: a longitudinal cohort study. Lancet Respir Med 2024; 12: 55–66. - PubMed
-
- A clinical case definition of post COVID-19 condition by a Delphi consensus. World Health Organization, https://www.who.int/publications/i/item/WHO-2019-nCoV-Post_COVID-19_cond... (2021, accessed 15 July 2022). - PMC - PubMed
-
- Rubin R. As their numbers grow, COVID-19 “long Haulers” stump experts. JAMA 2020; 324: 1381–1383. - PubMed
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