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Review
. 2024 Nov;23(6):1045-1054.
doi: 10.1016/j.jcf.2024.09.011. Epub 2024 Sep 25.

Cystic fibrosis foundation position paper: Redefining the cystic fibrosis care team

Rebekah F Brown  1 , Charlotte T Close  2 , Molly G Mailes  3 , Luis J Gonzalez  4 , Danielle M Goetz  5 , Stephanie S Filigno  6 , Rebecca Preslar  7 , Quynh T Tran  8 , Sarah E Hempstead  8 , Paula Lomas  8 , A Whitney Brown  9 , Patrick A Flume  10 ; CFF Care Model Committee
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Free article
Review

Cystic fibrosis foundation position paper: Redefining the cystic fibrosis care team

Rebekah F Brown et al. J Cyst Fibros. 2024 Nov.
Free article

Abstract

Interdisciplinary teams care for people with cystic fibrosis (pwCF) at specialized treatment centers. These teams have laid the foundation for the cystic fibrosis (CF) care model responsible for gains in health outcomes and quality of life within the CF community. However, the landscape of CF care is transforming, invigorated by new technologies, accessibility of cystic fibrosis transmembrane conductance regulator (CFTR) therapies, and increased utilization of telemedicine. In light of these advances, it is appropriate to re-evaluate the CF care team structure. This position paper offers guidance for the structure of a CF care center designed to meet the evolving needs of the CF community. Fundamental to the proposed center structure is recognition of pwCF and their families as integral members of their care teams, underpinning the necessity for shared decision making, awareness of social determinants of health, and active partnership between all healthcare professionals involved in the care of pwCF.

Keywords: Collaborative care; Cystic fibrosis; Interdisciplinary team.

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Conflict of interest statement

Declaration of competing interest The authors declare no conflict of interest. However, many authors are members of interdisciplinary teams and those CF Centers receive funding from the CF Foundation.

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