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. 2024 Sep 12:11:1431155.
doi: 10.3389/fmed.2024.1431155. eCollection 2024.

Co-creation in healthcare and research to improve service delivery for young people with chronic pain

Carolyn Berryman  1   2   3   4 , Tegan Starr  4 , Nicki Ferencz  4 , Rachael Coakley  5
Affiliations

Co-creation in healthcare and research to improve service delivery for young people with chronic pain

Carolyn Berryman et al. Front Med (Lausanne). .

Abstract

Introduction: The process of co-creation can enable more effective, agile and integrated healthcare solutions achieving outcomes that effectively translate to healthcare delivery. Collaborative knowledge generation is particularly important in fields such as pediatric chronic pain where there is a complex interplay between biological, social, environmental, emotional, familial and school factors. The co-creation initiative described here was designed to amplify the voices of youth with chronic pain and their families and a variety of key stakeholders and generate novel approaches to the management of chronic pediatric pain in the setting of the South Australian Pediatric Chronic Pain Service.

Methods: Stakeholders who were identified as influential in this ecosystem were allocated to 6 groups. A skilled facilitator co-prepared and delivered the workshop, engaging participants in three structured activities. Firstly, the challenges to service delivery were outlined, followed by the groups discussing what is currently working. The second activity involved lateral thinking without restrictions on time, resources or system to generate solutions to the key challenges presented. Finally, stakeholders were asked to agree on a generated solution from Activity 2 and build a case for actionable implementation of this solution. Data were summarised by the workshop facilitator and reflexive thematic analysis was used for coding and generating themes.

Results: From Activity 1, six themes collectively demonstrated that stakeholders valued many of the existing strengths of the service delivery, but some areas such as pain education was undervalued. Activity 2 generated solutions from high-level ideas to more day-to- day management strategies. Each of six groups generated unique solutions to an identified challenge for Activity 3.

Discussion: Engaging a wide variety of stakeholders in collaborative knowledge generation successfully provided the South Australian Pediatric Chronic Pain Service with a variety of novel, scalable solution across the healthcare continuum. Equally important is that this initiative helped to raise awareness about the complex issues faced in pediatric chronic pain care and helped to establish new partnerships that have led to enhanced service delivery.

Keywords: chronic pain; co-creation; collaborative knowledge; multidisciplinary; pediatric.

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Conflict of interest statement

TS, NF, and CB were employees of the Pediatric Chronic Pain Service at the Women’s and Children’s Hospital. RC is the founder and director of the Comfort Ability® Program, a clinical intervention licensed by Boston Children’s Hospital. Proceeds from the license partially fund her research lab; there was no commercial involvement. CB had received speaker fees for lectures on pain and rehabilitation and received support from ReturnToWorkSA and Kaiser Permanente Southern California.

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