Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes

Rebecca Pearce^#^{1

2}, Anne Synnes^#^{3

4

5}, Mei Mei Lam³, Lindsay L Richter³, Fabiana Bacchini⁶, Melissa Jones⁶, Thuy Mai Luu^#^{7

8}, Annie Janvier^#^{7

8

9

10

11

12}; PARENTS’ VOICE NETWORK

Affiliations

¹ Canadian Premature Babies Foundation Family Advisory Committee, Etobicoke, Ontario, Canada.
² Department of Integrated Studies in Education, McGill University, Montreal, Quebec, Canada.
³ Department of Pediatrics, University of British Columbia, Vancouver, British Columbia, Canada.
⁴ BC Children's Hospital Research Institute, Vancouver, British Columbia, Canada.
⁵ British Columbia Women's Hospital, Vancouver, British Columbia, Canada.
⁶ Canadian Premature Babies Foundation, Toronto, Ontario, Canada.
⁷ Research Center, CHU Sainte-Justine, Montreal, Quebec, Canada.
⁸ Department of Pediatrics, CHU Sainte-Justine.
⁹ Center for Applied Health Sciences Education, Faculty of Medicine, Université de Montréal, Montreal, Quebec, Canada.
¹⁰ Clinical Ethics Unit.
¹¹ Palliative Care Unit.
¹² Bureau du Partenariat Patients-Familles-Soignants, CHU Sainte-Justine, Quebec, Montreal, Canada.

^# Contributed equally.

Rebecca Pearce et al. Pediatrics. 2024.

. 2024 Nov 1;154(5):e2024067093.

doi: 10.1542/peds.2024-067093.

¹ Canadian Premature Babies Foundation Family Advisory Committee, Etobicoke, Ontario, Canada.
² Department of Integrated Studies in Education, McGill University, Montreal, Quebec, Canada.
³ Department of Pediatrics, University of British Columbia, Vancouver, British Columbia, Canada.
⁴ BC Children's Hospital Research Institute, Vancouver, British Columbia, Canada.
⁵ British Columbia Women's Hospital, Vancouver, British Columbia, Canada.
⁶ Canadian Premature Babies Foundation, Toronto, Ontario, Canada.
⁷ Research Center, CHU Sainte-Justine, Montreal, Quebec, Canada.
⁸ Department of Pediatrics, CHU Sainte-Justine.
⁹ Center for Applied Health Sciences Education, Faculty of Medicine, Université de Montréal, Montreal, Quebec, Canada.
¹⁰ Clinical Ethics Unit.
¹¹ Palliative Care Unit.
¹² Bureau du Partenariat Patients-Familles-Soignants, CHU Sainte-Justine, Quebec, Montreal, Canada.

^# Contributed equally.

No abstract available

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