[The role of patients in clinical and associative research: developments and challenges]

Abstract

In 2002, the Kouchner law made it possible to position patients as healthcare players. In particular, it recognizes the existence of experiential knowledge, giving them a role as experts in their illnesses. In this article, we'll look at how this expertise is put to good use in clinical research, and then in associative research. We will show that, while patient involvement in research has never been so important, there is still a long way to go.

Keywords: association de patients; expérience-patient; participation; patient; patient association; patient-experience; recherche; research.