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. 2025 May;24(4):647-665.
doi: 10.1177/14713012241292659. Epub 2024 Oct 11.

Navigating who I was and who I am online: How people with dementia use social media platforms to support identity

Catherine V Talbot  1   2 , Daisy Roe  1 , Melissa Brunner  3
Affiliations

Navigating who I was and who I am online: How people with dementia use social media platforms to support identity

Catherine V Talbot et al. Dementia (London). 2025 May.

Abstract

A diagnosis of dementia can have a powerful impact on identity, and social media platforms offer promising avenues for identity expression and reconciliation. Addressing limited research in this area, we used semi-structured interviews to explore how 10 people with dementia used social media to navigate their identity. Our thematic analysis produced four themes, showing how social media platforms afford unique opportunities for self-expression, visibility, and association, thereby empowering users to maintain their sense of self, challenge stereotypes, and foster community connections. Additionally, social media facilitated a multifaceted and holistic sense of identity beyond the confines of diagnosis. While there were concerns about online self-disclosure, sharing experiences of dementia had therapeutic benefits, aiding in acceptance and adjustment. Participants also leveraged social media to establish continuity between their pre- and post-diagnostic selves, providing a sense of stability amid uncertainty. With the increasing prevalence of social media use among people with dementia, proactive measures by healthcare professionals, policymakers, technology developers, and carers are required to cultivate online experiences that are safe, supportive, and inclusive of people with dementia.

Keywords: affordances; alzheimer; digital technology; online communities; self-disclosure; support.

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Conflict of interest statement

Declaration of conflicting interestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

References

    1. Andalibi N. (2019). What happens after disclosing stigmatized experiences on identified social media: Individual, dyadic, and social/network outcomes. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (137, pp. 1–15). DOI: 10.1145/3290605.3300367. - DOI
    1. Anderson J. G., Hundt E., Dean M., Keim-Malpass J., Lopez R. P. (2017). “The church of online support” examining the use of blogs among family caregivers of persons with dementia. Journal of Family Nursing, 23(1), 34–54. DOI: 10.1177/1074840716681289. - DOI - PubMed
    1. Baumgart M., Snyder H. M., Carrillo M. C., Fazio S., Kim H., Johns H. (2015). Summary of the evidence on modifiable risk factors for cognitive decline and dementia: A population-based perspective. Alzheimer's and Dementia, 11(6), 718–726. DOI: 10.1016/j.jalz.2015.05.016. - DOI - PubMed
    1. Beard R. L., Knauss J., Moyer D. (2009). Managing disability and enjoying life: How we reframe dementia through personal narratives. Journal of Aging Studies, 23(4), 227–235. DOI: 10.1016/j.jaging.2008.01.002. - DOI
    1. Boyd D. M., Ellison N. B. (2007). Social network sites: Definition, history, and scholarship. Journal of Computer-Mediated Communication, 13(1), 210–230. DOI: 10.1111/j.1083-6101.2007.00393.x. - DOI