Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2024 Dec;19(1):2419158.
doi: 10.1080/17482631.2024.2419158. Epub 2024 Oct 22.

Research staff's experiences of how the COVID-19 pandemic impacted recruitment for a paediatric network study

Affiliations

Research staff's experiences of how the COVID-19 pandemic impacted recruitment for a paediatric network study

Isobel Fishman et al. Int J Qual Stud Health Well-being. 2024 Dec.

Abstract

Purpose: Since the COVID-19 pandemic, a paediatric network study with clinical sites across Canada suffered a reduction in participation. When research studies fail to meet enrolment targets, it can reduce the strength and validity of the results. This study explores research staff's experiences of how the COVID-19 pandemic impacted recruitment for a paediatric network study.

Methods: This study was conducted using a qualitative design. Focus group sessions were used to gain the perspective of research staff involved in recruitment and transcripts were analysed using Colaizzi's seven-step method of data analysis.

Results: Analysis revealed four major themes: (1) the COVID-19 pandemic had an impact on research activity; (2) families of children with medical complexity perform a risk-benefit assessment when deciding whether to take part in research; (3) a trusting relationship with clinicians is a key factor in research recruitment; and (4) research needs to be flexible in order to adapt to evolving contexts.

Conclusion: This study identified both COVID-19 and non-COVID-19-related factors that impacted study recruitment for a paediatric network study. Understanding and addressing these challenges will mitigate the negative impacts on health outcomes that can occur when research studies fail to meet enrolment targets.

Keywords: COVID-19 pandemic; Study recruitment; healthcare; pediatric; research; research challenges.

PubMed Disclaimer

Conflict of interest statement

No potential conflict of interest was reported by the author(s).

References

    1. Archibald, M. M., Ambagtsheer, R. C., Casey, M. G., & Lawless, M. (2019). Using zoom videoconferencing for qualitative data collection: Perceptions and experiences of researchers and participants. International Journal Quality Methods, 18, 1–10. 10.1177/1609406919874596 - DOI
    1. Byers, P. Y., & Wilcox, J. R. (1973). Focus groups: A qualitative opportunity for researchers. Journal of Business Communication, 28(1), 63–78. 10.1177/002194369102800105 - DOI
    1. Canada’s Strategy for Patient-Oriented Research . (2011. Improving health outcomes through evidence-informed care. [Internet]. www.cihr-irsc.gc.ca
    1. Chafouleas, S. M., & Iovino, E. A. (2021). Comparing the initial impact of covid-19 on burden and psychological distress among family caregivers of children with and without developmental disabilities. School Psychology, 36(5), 358–366. 10.1037/spq0000426 - DOI - PubMed
    1. Chowdhury, S. F., Sium, S. M. A., & Anwar, S. (2021). Research and Management of Rare Diseases in the COVID-19 Pandemic Era: Challenges and Counter measures. Frontiers in public health, 9, 640282. 10.3389/fpubh - DOI - PMC - PubMed

LinkOut - more resources