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Review

Sustaining Community Engagement in Genomics Research: Proceedings of a Workshop—in Brief

National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Sciences Policy; Roundtable on the Genomics and Precision Health
Sarah H. Beachy, Joe Alper, Kathryn Asalone Shively
, editors.
Washington (DC): National Academies Press (US); 2024 Oct 25.
The National Academies Collection: Reports funded by National Institutes of Health.
Free Books & Documents
Review

Sustaining Community Engagement in Genomics Research: Proceedings of a Workshop—in Brief

National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Sciences Policy; Roundtable on the Genomics and Precision Health.
Free Books & Documents

Excerpt

Historical unethical practices such as systemic racism and structural discrimination have negatively impacted the trustworthiness of genomics research, particularly with underrepresented populations. Working collaboratively with populations through community engagement can improve the quality of the science and the research benefits to the communities. The National Academies Roundtable on Genomics and Precision Health held a July 2024 workshop to explore the challenges and opportunities for long-term, sustained community engagement and partnerships in genomics research.

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Grants and funding

SPONSORS This workshop was partially supported by contracts between the National Academies of Sciences and 23andMe, Inc; American Academy of Nursing; American College of Medical Genetics and Genomics; American Medical Association; American Society of Clinical Oncology; American Society of Human Genetics; Association for Molecular Pathology; Biogen; Blue Cross Blue Shield Association; College of American Pathologists; Geisinger Health; Genome Medical, Inc.; Health Resources and Services Administration (Contract No. HHSH250201500001I, Task Order No. 75R60220F34021); Illumina, Inc; The Jackson Laboratory (JAX); Kaiser Foundation Health Plan, Inc.; Myriad Genetics; National Institutes of Health (Contract No. HHSN263201800029I, Task Order No. 75N98023F00022), including All of Us Research Program, National Cancer Institute, National Human Genome Research Institute, National Institute of Mental Health, and National Institute on Aging; National Society of Genetic Counselors; the University of California, San Francisco; the University of Vermont Health Network Medical Group; and Vibrent Health.

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