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Editorial
. 2024 Dec 1;51(12):1156-1159.
doi: 10.3899/jrheum.2024-0951.

Ringing in the Patient Voice: Measuring Patients' Lived Experience of Dermatomyositis Symptoms

Affiliations
Editorial

Ringing in the Patient Voice: Measuring Patients' Lived Experience of Dermatomyositis Symptoms

Kaveh Ardalan et al. J Rheumatol. .
No abstract available

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Conflict of interest statement

Conflict of interest:

KA: Cabaletta Bio (advisory board, consultant); Childhood Arthritis and Rheumatology Research Alliance (consultant, Juvenile Dermatomyositis Committee Vice Chair)

LGR: Cure JM Foundation, Hope Pharmaceuticals, Cabaletta Bio, Horizon, Pfizer (advisory board, unpaid consultant)

References

    1. Rider LG, Aggarwal R, Machado PM, et al. Update on outcome assessment in myositis. Nat Rev Rheumatol 2018;14:303–18. - PMC - PubMed
    1. Aggarwal R, Rider LG, Ruperto N, et al. 2016 American College of Rheumatology/European League Against Rheumatism Criteria for Minimal, Moderate, and Major Clinical Response in Adult Dermatomyositis and Polymyositis: An International Myositis Assessment and Clinical Studies Group/Paediatric Rheumatology International Trials Organisation Collaborative Initiative. Arthritis Rheumatol 2017;69:898–910. - PMC - PubMed
    1. Rider LG, Aggarwal R, Pistorio A, et al. 2016 American College of Rheumatology/European League Against Rheumatism Criteria for minimal, moderate, and major clinical response in juvenile dermatomyositis: an International Myositis Assessment and Clinical Studies Group/Paediatric Rheumatology International Trials Organisation collaborative initiative. Arthritis Rheumatol 2017;69:911–23. - PMC - PubMed
    1. Miller FW, Rider LG, Chung YL, et al. Proposed preliminary core set measures for disease outcome assessment in adult and juvenile idiopathic inflammatory myopathies. Rheumatol Oxf 2001;40:1262–73. - PubMed
    1. Aggarwal R, Charles-Schoeman C, Schessl J, et al. Trial of Intravenous Immune Globulin in Dermatomyositis. N Engl J Med 2022;387:1264–78. - PubMed

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