Ringing in the Patient Voice: Measuring Patients' Lived Experience of Dermatomyositis Symptoms
- PMID: 39486855
- PMCID: PMC11611614
- DOI: 10.3899/jrheum.2024-0951
Ringing in the Patient Voice: Measuring Patients' Lived Experience of Dermatomyositis Symptoms
Conflict of interest statement
Conflict of interest:
KA: Cabaletta Bio (advisory board, consultant); Childhood Arthritis and Rheumatology Research Alliance (consultant, Juvenile Dermatomyositis Committee Vice Chair)
LGR: Cure JM Foundation, Hope Pharmaceuticals, Cabaletta Bio, Horizon, Pfizer (advisory board, unpaid consultant)
References
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- Aggarwal R, Rider LG, Ruperto N, et al. 2016 American College of Rheumatology/European League Against Rheumatism Criteria for Minimal, Moderate, and Major Clinical Response in Adult Dermatomyositis and Polymyositis: An International Myositis Assessment and Clinical Studies Group/Paediatric Rheumatology International Trials Organisation Collaborative Initiative. Arthritis Rheumatol 2017;69:898–910. - PMC - PubMed
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- Rider LG, Aggarwal R, Pistorio A, et al. 2016 American College of Rheumatology/European League Against Rheumatism Criteria for minimal, moderate, and major clinical response in juvenile dermatomyositis: an International Myositis Assessment and Clinical Studies Group/Paediatric Rheumatology International Trials Organisation collaborative initiative. Arthritis Rheumatol 2017;69:911–23. - PMC - PubMed
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- Miller FW, Rider LG, Chung YL, et al. Proposed preliminary core set measures for disease outcome assessment in adult and juvenile idiopathic inflammatory myopathies. Rheumatol Oxf 2001;40:1262–73. - PubMed
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- Aggarwal R, Charles-Schoeman C, Schessl J, et al. Trial of Intravenous Immune Globulin in Dermatomyositis. N Engl J Med 2022;387:1264–78. - PubMed
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