Practicing health equity in kidney care by establishing improved access to timely disease management and kidney replacement therapy options: from providers to patients
- PMID: 39492778
- DOI: 10.1097/MNH.0000000000001038
Practicing health equity in kidney care by establishing improved access to timely disease management and kidney replacement therapy options: from providers to patients
Abstract
Purpose of review: The aim of this article is to review the current understanding of disparities in healthcare experienced by people living with kidney disease and emerging approaches to address root causes. Health equity for any disease state is an aspirational goal commonly sought out by the medical community, but all too often lacking the understanding and support required to improve the outcomes of people with complex conditions such as chronic kidney disease (CKD).
Recent findings: The main themes of the literature covered in this article include a review of the structural drivers of healthcare outcomes, a description of research in the fields of health literacy and patient activation for patients with CKD, and an analysis of the examples of healthcare disparities in CKD patients that include involuntary discharges from dialysis facilities as well as the toll taken from dialysis populations during natural disasters. The National Forum of the ESRD Networks is a coalition of 18 congressionally mandated ESRD network organizations committed to equitable access to home and in-center dialysis modalities and preemptive kidney transplantation. We conclude with the patient-centered story of a patient living with end-stage kidney disease for over 40 years and how her journey has helped shape her view on what she believes should encompass a 'call to action' to provide more equitable healthcare to people living with kidney disease.
Summary: The overarching implications of this article focus on improving the understanding of present-day healthcare inequality within the community of people living with kidney disease and providing a roadmap of resources and ideas that will help achieve more equitable outcomes. The National Forum of the ESRD Networks is committed to the effective implementation of 'Practicing Health Equity in Kidney Care' and improving access to dialysis modalities including home dialysis as well as kidney transplantation including preemptive transplant options.
Copyright © 2024 Wolters Kluwer Health, Inc. All rights reserved.
References
-
- United States Renal Data System. 2023 USRDS Annual Data Report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, Maryland, USA, 2023. Available at: https://usrds-adr.niddk.nih.gov/2023/end-stage-renal-disease/1-incidence... . [Accessed 7 July 2024].
-
- Health and Human Services Advancing American Kidney Health Initiative (2019). Available at: https://aspe.hhs.gov/sites/default/files/private/aspe-files/262056/advan... . [Accessed 7 July 2024].
-
- U.S. Department of Health and Human Services. Health and Human Services Equity Action Plan. U.S. Department of Health and Human Services, 2022. Addressing kidney health disparities with new national policy: the time is now - PMC (nih.gov)
-
- Health Equity CMS. Available at: https://www.cms.gov/pillar/health-equity#:∼:text=To%20CMS%2C%20health%20... . [Accessed 8 July 2024].
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- Givens ML, Catlin BB, Johnson SP, et al. What do we know about the drivers of health and equity? A narrative review of graphic representations. Health Equity 2020; 4:446–462.
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