Unlocking Engagement: Enhancing Participation in Research With Vulnerable Populations

Collaborators, Affiliations

¹ Department of Family Medicine, Faculty of Medicine and Health Sciences, McGill University, Montreal, Canada.
² Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, QC, Canada.
³ Center for Research and Expertise in Social Gerontology, CIUSSS Centre-Ouest de l'Ile-de-Montréal, Montréal, QC, Canada.
⁴ Department of Medicine Division of Geriatrics, McGill University Health Center, Montreal, QC, Canada.
⁵ Faculty of Medicine and Dentistry, University of Alberta, Edmonton, AB, Canada.
⁶ CHU Lille, ULR 2694 - METRICS: Evaluation des Technologies de Santé et des Pratiques Médicales, Université de Lille, Lille, France.
⁷ Institute for Clinical Evaluative Sciences, Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.
⁸ Department of Health Management, Evaluation and Policy, School of Public Health, University of Montreal, Montreal, QC, Canada.
⁹ Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
¹⁰ KITE Research Institute, Toronto Rehabilitation Institute, University Health Network, Toronto, ON, Canada.

Laura Rojas-Rozo et al. Int J Public Health. 2024.

. 2024 Oct 31:69:1606705.

doi: 10.3389/ijph.2024.1606705. eCollection 2024.

¹ Department of Family Medicine, Faculty of Medicine and Health Sciences, McGill University, Montreal, Canada.
² Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, QC, Canada.
³ Center for Research and Expertise in Social Gerontology, CIUSSS Centre-Ouest de l'Ile-de-Montréal, Montréal, QC, Canada.
⁴ Department of Medicine Division of Geriatrics, McGill University Health Center, Montreal, QC, Canada.
⁵ Faculty of Medicine and Dentistry, University of Alberta, Edmonton, AB, Canada.
⁶ CHU Lille, ULR 2694 - METRICS: Evaluation des Technologies de Santé et des Pratiques Médicales, Université de Lille, Lille, France.
⁷ Institute for Clinical Evaluative Sciences, Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.
⁸ Department of Health Management, Evaluation and Policy, School of Public Health, University of Montreal, Montreal, QC, Canada.
⁹ Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
¹⁰ KITE Research Institute, Toronto Rehabilitation Institute, University Health Network, Toronto, ON, Canada.

No abstract available

Keywords: dementia; guide; participatory research; patient engagement; vulnerability.

Conflict of interest statement

The authors declare that they do not have any conflicts of interest.

1. Domecq JP, Prutsky G, Elraiyah T, Wang Z, Nabhan M, Shippee N, et al. Patient Engagement in Research: A Systematic Review. BMC Health Serv Res (2014) 14:89. 10.1186/1472-6963-14-89 - DOI - PMC - PubMed
1. Sacristán JA, Aguarón A, Avendaño-Solá C, Garrido P, Carrión J, Gutiérrez A, et al. Patient Involvement in Clinical Research: Why, When, and How. Patient Prefer Adherence (2016) 10:631–40. 10.2147/PPA.S104259 - DOI - PMC - PubMed
1. Duffett L. Patient Engagement: What Partnering With Patient in Research Is All About. Thromb Res (2017) 150:113–20. 10.1016/j.thromres.2016.10.029 - DOI - PubMed
1. Brett J, Staniszewska S, Mockford C, Herron-Marx S, Hughes J, Tysall C, et al. A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities. Patient (2014) 7(4):387–95. 10.1007/s40271-014-0065-0 - DOI - PubMed
1. Brett J, Staniszewska S, Mockford C, Herron-Marx S, Hughes J, Tysall C, et al. Mapping the Impact of Patient and Public Involvement on Health and Social Care Research: A Systematic Review. Health Expect (2014) 17(5):637–50. 10.1111/j.1369-7625.2012.00795.x - DOI - PMC - PubMed