Access and Use of Electronic Health Information by Individuals with Cancer: 2017-2018
- PMID: 39591490
- Bookshelf ID: NBK609600
Access and Use of Electronic Health Information by Individuals with Cancer: 2017-2018
Excerpt
Nearly 40 percent of individuals will be diagnosed with cancer at some point in their lifetime. For these individuals, access, exchange, and use of electronic health information is critical to managing their complex health needs. Patient access to online medical records enable these individuals to track their health information, communicate with their care team, and request refills of medications. In 2016, the President's Cancer Panel sought to improve cancer-related outcomes with connected health by calling attention to enabling individuals to manage their health information and participate in their care across the cancer continuum. This data brief uses the National Cancer Institute's nationally representative Health Information National Trends Survey (HINTS) to examine the access and use of health information technology by individuals diagnosed with cancer. To achieve a robust sample, we have combined data from the 2017 and 2018 surveys.
Sections
- Highlights
- Individuals with a previous cancer diagnosis reported being offered access to their online medical record at higher rates than those who have never had cancer.
- Among individuals offered access to an online medical record, nearly seven in 10 individuals with a recent cancer diagnosis viewed their record at least once in the past year.
- Individuals with a previous cancer diagnosis most commonly cited a preference to speak to a health care provider directly as the reason why they did not view their online medical record.
- The types of information in individuals’ online medical record did not vary by having a previous cancer diagnosis.
- Individuals’ use of online medical record did not vary by cancer status.
- Individuals with a previous cancer diagnosis were more likely to be older, insured, have visited a doctor in the past year, and have a chronic condition.
- About three-quarters of individuals with a previous cancer diagnosis reported owning a tablet or smartphone.
- Nearly four in 10 cancer survivors who used a health & wellness app or other electronic monitoring devices reported sharing information from their device with a health professional.
- Individuals with a recent cancer diagnosis were more likely to experience a gap in information exchange compared to individuals who have never had cancer.
- Summary
- Definitions
- Data Availability
- References
- Acknowledgements
References
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- National Cancer Institute; Cancer Statistics. 2018 April; https://www.cancer.gov/about%20cancer/understanding/statistics
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- President's Cancer Panel; Improving Cancer-Related Outcomes with Connected Health. 2016 November; https://prescancerpanel.cancer.gov/reports-meetings/connected-health-rep...
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- Patel V, Johnson C. Trends in Individuals' Access and Use of Online Medical Records and Technology for Health Needs: 2017-2018. Washington DC: Office of the Assistant Secretary for Technology Policy; No.48 Health IT Data Brief. 2019 - PubMed
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