Gynecological care needs for young women with spina bifida

Ellen Fremion¹, Rachel Madey², Elizabeth Harper³, Kristen A Staggers⁴, K Jordan Kemere⁵, John Berens¹, Tara Harris⁶

Affiliations

¹ Transition Medicine Clinic, Department of Medicine, Baylor College of Medicine, One Baylor Plaza MS902, Houston, TX 77030, USA.
² Internal Medicine and Pediatrics Residency, Baylor College of Medicine, One Baylor Plaza MS620, Houston, TX 77030, USA.
³ Surgery Residency, Baylor College of Medicine, One Baylor Plaza MS390, Houston, TX 77030, USA.
⁴ Institute for Clinical and Translational Research, Baylor College of Medicine, One Baylor Plaza MS450, Houston, TX 77030, USA.
⁵ Transition Medicine Clinic, Department of Medicine, Baylor College of Medicine, One Baylor Plaza MS902, Houston, TX 77030, USA.
⁶ Department of Obstetrics and Gynecology, Baylor College of Medicine, One Baylor Plaza MS902, Houston, TX 77030, USA.

PMID: 39712996
PMCID: PMC11657944
DOI: 10.1016/j.hctj.2023.100002

Gynecological care needs for young women with spina bifida

Ellen Fremion et al. Health Care Transit. 2023.

. 2023 Apr 29:1:100002.

doi: 10.1016/j.hctj.2023.100002. eCollection 2023.

Authors

Ellen Fremion¹, Rachel Madey², Elizabeth Harper³, Kristen A Staggers⁴, K Jordan Kemere⁵, John Berens¹, Tara Harris⁶

Affiliations

¹ Transition Medicine Clinic, Department of Medicine, Baylor College of Medicine, One Baylor Plaza MS902, Houston, TX 77030, USA.
² Internal Medicine and Pediatrics Residency, Baylor College of Medicine, One Baylor Plaza MS620, Houston, TX 77030, USA.
³ Surgery Residency, Baylor College of Medicine, One Baylor Plaza MS390, Houston, TX 77030, USA.
⁴ Institute for Clinical and Translational Research, Baylor College of Medicine, One Baylor Plaza MS450, Houston, TX 77030, USA.
⁵ Transition Medicine Clinic, Department of Medicine, Baylor College of Medicine, One Baylor Plaza MS902, Houston, TX 77030, USA.
⁶ Department of Obstetrics and Gynecology, Baylor College of Medicine, One Baylor Plaza MS902, Houston, TX 77030, USA.

PMID: 39712996
PMCID: PMC11657944
DOI: 10.1016/j.hctj.2023.100002

No abstract available

Keywords: General gynecology; Myelomeningocele; Spinal dysraphism; Transition to adult care; Well woman care; Women with disabilities.

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Conflict of interest statement

The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.

References

1. Jackson A.B., Mott P.K. Reproductive health care for women with spina bifida. Sci World J. 2007;7:1875–1883. doi: 10.1100/tsw.2007.304. - DOI - PMC - PubMed
1. Liu J.S., Vo A.X., Doolittle J., Hamoui N., Lewicky-Gaupp C., Kielb S.J. Characterizing pelvic organ prolapse in adult spina bifida patients. Urology. 2016;97:273–276. doi: 10.1016/j.urology.2016.06.026. - DOI - PubMed
1. el Akri M., Alimi Q., Hascoet J., et al. Risk of prolapse and urinary complications in adult spina bifida patients with neurogenic acontractile detrusor using clean intermittent catheterization versus Valsalva voiding. Neurourol Urodyn. 2019;38:269–277. doi: 10.1002/nau.23844. - DOI - PubMed
1. Huck N., Schweizerhof S., Honeck P., Neisius A., Thüroff J.W., Stein R. Pregnancy after urinary diversion at young ages—risks and outcome. Urology. 2017;104:220–224. doi: 10.1016/j.urology.2017.01.033. - DOI - PubMed
1. Streur C.S., Schafer C.L., Garcia V.P., et al. “He told me it would be extremely selfish of me to even consider [having kids]”: The importance of reproductive health to women with spina bifida and the lack of support from their providers. Disabil Health J 2019;13:100815. doi:10.1016/j.dhjo.2019.06.004. - PMC - PubMed

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Gynecological care needs for young women with spina bifida

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Gynecological care needs for young women with spina bifida

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Conflict of interest statement

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