Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Comment
. 2025 Feb;25(2):77-79.
doi: 10.1080/15265161.2024.2441719. Epub 2025 Jan 29.

Beyond Individual Responsibility: Group Harms in Genomic (Data-Centric) Research Ethics Require Structural, Justice-Oriented Solutions

Affiliations
Comment

Beyond Individual Responsibility: Group Harms in Genomic (Data-Centric) Research Ethics Require Structural, Justice-Oriented Solutions

Magdalena Eitenberger et al. Am J Bioeth. 2025 Feb.
No abstract available

PubMed Disclaimer

Conflict of interest statement

DISCLOSURE STATEMENT

No potential conflict of interest was reported by the author(s).

Comment in

Comment on

References

    1. Chapman CR, Quinn GP, Natri HM, Berrios C, Dwyer P, Owens K, Heraty S, and Caplan AL. 2025. Consideration and disclosure of group risks in genomics and other data-centric research: Does the Common Rule need revision? The American Journal of Bioethics 25 (2):47–60. doi: 10.1080/15265161.2023.2276161. - DOI - PMC - PubMed
    1. Churchill S, Largent EA, Taggert E, and Lynch HF. 2022. Diversity in IRB membership: Views of IRB chair-persons at US Universities and Academic Medical Centers. The American Journal of Bioethics Empirical Bioethics 13 (4):237–50. doi: 10.1080/23294515.2022.2110962. - DOI - PubMed
    1. Felt U, Bister M, Strassnig M, and Wagner U. 2009. Refusing the information paradigm: Informed consent, medical research, and patient participation. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 13 (1):87–106. doi: 10.1177/1363459308097362. - DOI - PubMed
    1. HHS 2018. 45 CFR 46.101(i), Common Rule: Code of Federal Regulations Jacobellis v. Ohio 378 U.S 184 (1964).
    1. McDonald KE, Conroy NE, Olick RS, and Panel TPEE. 2017. What’s the harm? Harms in research with adults with intellectual disability. American Journal on Intellectual and Developmental Disabilities 122 (1):78–92. doi: 10.1352/1944-7558-122.1.78. - DOI - PMC - PubMed

LinkOut - more resources