Common Rule Revisions to Govern Machine Learning on Indigenous Data: Implementing the Expectations
- PMID: 39878726
- PMCID: PMC11920922
- DOI: 10.1080/15265161.2024.2441737
Common Rule Revisions to Govern Machine Learning on Indigenous Data: Implementing the Expectations
Conflict of interest statement
DISCLOSURE STATEMENT
No potential conflict of interest was reported by the author(s).
Comment in
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Wanted, but Elusive: Clear Solutions for Addressing Potential Group Harm in Data-Centric Research.Am J Bioeth. 2025 Apr;25(4):W13-W16. doi: 10.1080/15265161.2025.2470696. Epub 2025 Mar 11. Am J Bioeth. 2025. PMID: 40067136 No abstract available.
Comment on
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Consideration and Disclosure of Group Risks in Genomics and Other Data-Centric Research: Does the Common Rule Need Revision?Am J Bioeth. 2025 Feb;25(2):47-60. doi: 10.1080/15265161.2023.2276161. Epub 2023 Nov 27. Am J Bioeth. 2025. PMID: 38010648
References
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- Australian Institute of Aboriginal and Torres Strait Islander Studies (AIATSIS). 2020. AIATSIS Code of Ethics for Aboriginal and Torres Strait Islander Research. https://aiatsis.gov.au/research/ethical-research/code-ethics.
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- Canadian Institutes of Health Research. 2022. Chapter 9. Research involving the first nations, inuit, and métis peoples of Canada. In Tri-council policy statement: Ethical conduct for research involving humans. Natural Sciences and Engineering Research Council of Canada, and Social Sciences and Humanities Research Council of Canada.
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- Carroll SR, Garba I, Figueroa-Rodríguez OL, Holbrook J, Lovett R, Materechera S, Parsons M, Raseroka K, Rodriguez-Lonebear D, Rowe R, et al. 2020. The CARE principles for indigenous data governance. Data Science Journal 19 (43):1–12. doi: 10.5334/dsj-2020-043. - DOI
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- Chapman CR, Quinn GP, Natri HM, Berrios C, Dwyer P, Owens K, Heraty S, and Caplan AL 2025. Consideration and disclosure of group risks in genomics and other data-centric research: does the common rule need revision? The American Journal of Bioethics 25 (2):47–60. doi: 10.1080/15265161.2023.2276161. - DOI - PMC - PubMed
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- David-Chavez D 2022. Testimony before the United States House of Representatives Committee on Science, Space, and Technology, hearing on “now or never: The urgent need for ambitious climate action.” https://science.house.gov/imo/media/doc/chavez_testimony.pdf.
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