Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2025 Jan 24:96:116-126.
doi: 10.2340/17453674.2024.42706.

Arthroplasty registries at a glance: an initiative of the International Society of Arthroplasty Registries (ISAR) to facilitate access, understanding, and reporting of registry data from an international perspective

Anne Lübbeke  1 , Lotje A Hoogervorst  2 , Perla J Marang-van de Mheen  3 , Heather A Prentice  4 , Ola Rolfson  5 , Rob G H H Nelissen  2 , Arnd Steinbrück  6 , Gearoid McGauran  7 , Christophe Barea  8 , Kajsa Erikson  5 , Alma B Pedersen  9 , Martyn Porter  10 ; ISAR group
Collaborators, Affiliations

Arthroplasty registries at a glance: an initiative of the International Society of Arthroplasty Registries (ISAR) to facilitate access, understanding, and reporting of registry data from an international perspective

Anne Lübbeke et al. Acta Orthop. .

Abstract

Background and purpose: The amount of information publicly available from arthroplasty registries is large but could be used more effectively. This project aims to improve the knowledge concerning existing registries to facilitate access, transparency, harmonization, and reporting.

Methods: Within the International Society of Arthroplasty Registries (ISAR) we aimed at developing, testing, adopting, and making publicly available a short, standardized registry description with items considered relevant for stakeholders using a cross-sectional study survey. Items were chosen based on a literature review and expert advice, selected by 9 ISAR working group members, tested iteratively in 3 registries, and commented upon by 4 external experts. All 29 ISAR member registries as of July 2023 were invited to participate in the project.

Results: Included items covered general descriptive information regarding registries, information related to governance, outcomes, data quality, data access, and registry production. The template was adopted, completed, and made publicly available by 25 of the 29 registries. Of those, 2/3 were national registries. 23 captured both hip and knee arthroplasties and 10 captured shoulder arthroplasties. Most registries had public reporting of data quality, methods, and results. Data was accessible in all but 2 registries, mainly as aggregated data. Important items relevant to registry quality for researchers to consistently indicate in scientific papers include scope, inclusion criteria, outcomes definitions, coverage/completeness, and validation processes.

Conclusion: This ISAR initiative implemented a short, standardized description to facilitate appropriate use of orthopedic registry data worldwide relevant for a diverse group of stakeholders including researchers, industry, public health and regulatory agencies.

PubMed Disclaimer

Figures

Table 1
Table 1
Scope of registries and types of joint arthroplasties covered
Table 2
Table 2
Overview of coverage, procedure completeness, outcomes captured, and data sharing
None
See this image and copyright information in PMC

References

    1. Malchau H, Garellick G, Berry D, Harris W H, Robertson O, Kärrholm J, et al. . Arthroplasty implant registries over the past five decades: development, current, and future impact. J Orthop Res 2018; 36(9): 2319-30. doi: 10.1002/jor.24014. - DOI - PubMed
    1. Herberts P, Malchau H. Long-term registration has improved the quality of hip replacement: a review of the Swedish THR Register comparing 160,000 cases. Acta Orthop Scand 2000; 71(2): 111-21. doi: 10.1080/000164700317413067. - DOI - PubMed
    1. Graves S. The value of arthroplasty registry data. Acta Orthop 2010; 81 (1): 8-9. doi: 10.3109/17453671003667184 - DOI - PMC - PubMed
    1. Galea V P, Rojanasopondist P, Matuszak S J, Connelly J W, Bragdon C R, Paxton L, et al. . The benefits of national and regional arthroplasty registries. Instr Course Lect 2019; 68: 681-94. PMID: 32032065. - PubMed
    1. Okafor C E, Nghiem S, Byrnes J. Are joint replacement registries associated with burden of revision changes? A real-world panel data regression analysis. BMJ Open 2023; 13(1): e063472. doi: 10.1136/bmjopen-2022-063472. - DOI - PMC - PubMed

LinkOut - more resources