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. 2025 Feb 18:322:32-36.
doi: 10.3233/SHTI250009.

Canadians and Digital Health Data: Privacy Experiences and Perspectives

Nelson Shen  1   2 , Iman Kassam  1   2 , Jessica Kemp  1   2 , Sheng Chen  1 , Clement Ma  1 , Daria Ilkina  3 , Janet Guervara  3 , Abigail Carter-Langford  3
Affiliations

Canadians and Digital Health Data: Privacy Experiences and Perspectives

Nelson Shen et al. Stud Health Technol Inform. .

Abstract

Recent policy recommendations on the use of health data call for an understanding of privacy experiences and perspectives. A secondary analysis of a national survey was conducted to characterize public experiences views on digital health (n=2010). This study found that 69.8% of participants are unaware of health privacy laws yet 71.8% were confident in protecting their online privacy. These variables were significantly associated with beliefs that their privacy was adequately protected. This study reinforces the discourse that public engagement in building awareness of the law and confidence in data protection will be critical in fostering trust in health privacy safeguards.

Keywords: Digital Literacy; Health Data Strategy; Privacy; Public Engagement.

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