Five ways to enhance the diversity and quality of health data

Paola Quattroni¹, Ash Routen², Joe Alderman^{3

4}, Claire Argent¹, Samuel Cusworth³, Hajira Dambha-Miller⁵, Rose Drummond⁶, Alastair Denniston^{3

4}, Poushali Ganguli⁷, Nicola Hamilton⁸, Uwaye Ideh¹, Sara Khalid⁹, Aden Kwok¹⁰, Elinor Laws^{3

4}, Xiaoxuan Liu^{3

4}, Vahe Nafilyan⁵, Jo Palmer^{3

4}, Marta Pineda-Moncusi⁹, Alexia Sampri¹¹, Holly Tibble¹², Fatemeh Torabi¹³, Jonathan Valabhji¹⁴, Diana Withrow¹⁵, Claire Welsh¹⁶, Angela M Wood¹¹, Ashley Akbari¹³, Kamlesh Khunti¹⁷

Affiliations

¹ Health Data Research UK, London, UK.
² Diabetes Research Centre, Leicester Diabetes Research Centre, University of Leicester, Leicester, UK.
³ NIHR Birmingham Biomedical Research Centre, Birmingham, UK.
⁴ STANDING Together Initiative, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK.
⁵ Aldermoor Health Centre, University of Southampton, Southampton, UK.
⁶ Office for National Statistics, London, UK.
⁷ Kings College London, London, UK.
⁸ Understanding Patient Data, London, UK.
⁹ Centre for Statistics in Medicine, Botnar Research Centre, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences (NDORMS), University of Oxford, Oxford, UK.
¹⁰ University of Oxford, Applied Health Research Unit, Nuffield Department of Population Health, Oxford, UK.
¹¹ British Heart Foundation Cardiovascular Epidemiology Unit, Department of Public Health and Primary Care, National Institute for Health Research Blood Transplant Research Unit in Donor Health and Genomics, and British Heart Foundation Centre of Research Excellence, University of Cambridge, Cambridge, UK.
¹² Usher Institute, College of Medicine and Veterinary Medicine, University of Edinburgh, Edinburgh, UK.
¹³ Population Data Science, Swansea University Medical School, Faculty of Medicine, Health, and Life Science, Swansea University, Swansea, UK.
¹⁴ Department of Metabolism, Digestion and Reproduction, Faculty of Medicine, Chelsea and Westminster Hospital Campus, Imperial College London, London, UK.
¹⁵ Nuffield Department of Primary Care Health Sciences, Radcliffe Observatory Quarter, University of Oxford, Oxford, UK.
¹⁶ National Disease Registration Service, Data and Analytics, Transformation Directorate, NHS England, London, UK.
¹⁷ Diabetes Research Centre, Leicester Diabetes Research Centre, University of Leicester, Leicester, UK. kk22@le.ac.uk.

PMID: 39994476
DOI: 10.1038/s41591-025-03545-6

Five ways to enhance the diversity and quality of health data

Paola Quattroni et al. Nat Med. 2025 Jun.

. 2025 Jun;31(6):1747-1750.

doi: 10.1038/s41591-025-03545-6.

Authors

Affiliations

¹ Health Data Research UK, London, UK.
² Diabetes Research Centre, Leicester Diabetes Research Centre, University of Leicester, Leicester, UK.
³ NIHR Birmingham Biomedical Research Centre, Birmingham, UK.
⁴ STANDING Together Initiative, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK.
⁵ Aldermoor Health Centre, University of Southampton, Southampton, UK.
⁶ Office for National Statistics, London, UK.
⁷ Kings College London, London, UK.
⁸ Understanding Patient Data, London, UK.
⁹ Centre for Statistics in Medicine, Botnar Research Centre, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences (NDORMS), University of Oxford, Oxford, UK.
¹⁰ University of Oxford, Applied Health Research Unit, Nuffield Department of Population Health, Oxford, UK.
¹¹ British Heart Foundation Cardiovascular Epidemiology Unit, Department of Public Health and Primary Care, National Institute for Health Research Blood Transplant Research Unit in Donor Health and Genomics, and British Heart Foundation Centre of Research Excellence, University of Cambridge, Cambridge, UK.
¹² Usher Institute, College of Medicine and Veterinary Medicine, University of Edinburgh, Edinburgh, UK.
¹³ Population Data Science, Swansea University Medical School, Faculty of Medicine, Health, and Life Science, Swansea University, Swansea, UK.
¹⁴ Department of Metabolism, Digestion and Reproduction, Faculty of Medicine, Chelsea and Westminster Hospital Campus, Imperial College London, London, UK.
¹⁵ Nuffield Department of Primary Care Health Sciences, Radcliffe Observatory Quarter, University of Oxford, Oxford, UK.
¹⁶ National Disease Registration Service, Data and Analytics, Transformation Directorate, NHS England, London, UK.
¹⁷ Diabetes Research Centre, Leicester Diabetes Research Centre, University of Leicester, Leicester, UK. kk22@le.ac.uk.

PMID: 39994476
DOI: 10.1038/s41591-025-03545-6

Erratum in

Author Correction: Five ways to enhance the diversity and quality of health data.
Quattroni P, Routen A, Alderman J, Argent C, Cusworth S, Dambha-Miller H, Drummond R, Denniston A, Ganguli P, Hamilton N, Ideh U, Khalid S, Kwok A, Laws E, Liu X, Nafilyan V, Palmer J, Pineda-Moncusi M, Sampri A, Tibble H, Torabi F, Valabhji J, Withrow D, Welsh C, Wood AM, Akbari A, Khunti K. Quattroni P, et al. Nat Med. 2025 Jun;31(6):2069. doi: 10.1038/s41591-025-03612-y. Nat Med. 2025. PMID: 40021836 No abstract available.

No abstract available

PubMed Disclaimer

Conflict of interest statement

Competing interests: K.K. is the director of the Centre for Ethnic Health Research, University of Leicester, and chaired the Office for National Statistics Ethnicity Working Group. All other authors declare no competing interests.

References

1. Public Health England. https://go.nature.com/4hHs4Dy (August, 2020).
1. Pineda-Moncusí, M. et al. Sci. Data 11, 221 (2024). - DOI - PubMed - PMC
1. Office for National Statistics. https://go.nature.com/415ePY1 (accessed 16 July 2024).
1. Scobie, S., Spencer, J. & Raleigh, V. Nuffield Trust https://go.nature.com/40KkocN (June, 2021).
1. Health Data Research UK. https://go.nature.com/4hNmIqf (accessed 16 July 2024).

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Five ways to enhance the diversity and quality of health data

Affiliations

Five ways to enhance the diversity and quality of health data

Authors

Affiliations

Erratum in

Conflict of interest statement

References