Patient and caregiver involvement in implementing health research in chronic kidney disease: a workshop report

Dale Coghlan¹, Allison Jaure^{2

3}, Anastasia Hughes^{2

3}, Rebecca Wu^{2

3}, Andrea K Viecelli^{4

5

6}, Noa Amir^{2

3}, Hayley Candler⁴, Brydee Cashmore^{2

3}, Yeoungjee Cho^{4

5

6}, Jonathan C Craig¹, Rosanna Cazzolli^{2

3}, Chandana Guha^{2

3}, Carmel M Hawley^{4

5

6}, Amandi Hiyare-Hewage¹, Martin Howell^{2

3

7}, Shilpanjali Jesudason^{8

9}, David W Johnson^{4

5

6}, Dominic Keuskamp^{8

10}, Feruza Kholmurodova¹⁰, Karine Manera^{2

3}, Jasmin Mazis¹⁰, Stephen McDonald^{8

9

10}, Shyamsundar Muthuramalingam¹¹, Javier Recabarren Silva^{2

3}, Amanda Sluiter^{2

3}, Armando Teixeira-Pinto^{2

3}, David J Tunnicliffe^{2

3}, Anita van Zwieten^{2

3}, Pushparaj Velayudham⁴, Germaine Wong^{2

3}, Nicole Scholes-Robertson^{2

3}; workshop investigators

Collaborators, Affiliations

Collaborators

workshop investigators:
Adela Yip, Alice Kennard, Allan Blackley, Allison Jaure, Amanda Dominello, Amanda Sluiter, Amandi Hiyare, Amber Williamson, Amy Luchterhand, Anastasia Hughes, Andrea Viecelli, Andrew Currey, Angela Rejuso, Anh Kieu, Anh Tho Tien, Anita van Zwieten, Annie Conway, Armando Teixeira-Pinto, Bill, Breonny Robson, Brydee Johnson, Carmel Hawley, Chandana Guha, Clarissa Hompas, Dale Coghlan, Darling Rojas-Canales, David J Tunnicliffe, Dominic Keuskamp, Effie Johns, Erandi Hewawasam, Felicity Lord, Fiona Carlisle, Fleur Tuthill, Germaine Wong, Gorjana Radisic, Hayley Candler, Heather Shepherd, Helen Coolican, Henry Pleass, Ieyesha Roberts, Irene Mewburn, Isabelle Haklar, Janelle Colquhoun, Janet Kelly, Jasmin Mazis, Javier Recabarren, Jill Brown, Joy Roberts, Karine Manera, Kathy Strudwick, Kim Nguyen, Luca Torrisi, Madeleine Parker, Madeleine Rapisardi, Martin Howell, Michael Collins, Natalie Brown, Nicky Boulter, Nicole Scholes-Robertson, Noa Amir, Pushparaj Velayudham, Rachel Li, Richard Le Leu, Rick Rapana, Robert Dale, Rosanna Cazzolli, Sadia Jahn, Sally Spence, Seethalakshmi Viswanathan, Shyamsundar Muthuramalingam, Yeoungjee Cho, Verlencia En Ying Chu, Victoria Sinka, Vishal Diwan, Wendy Hoy

Affiliations

¹ Flinders University, Bedford Park, South Australia, Australia.
² Sydney School of Public Health, The University of Sydney, Australia.
³ Centre for Kidney Research, The Children's Hospital at Westmead, Australia.
⁴ Australasian Kidney Trials Network (AKTN), Centre for Health Services Research, Faculty of Medicine, The University of Queensland, Brisbane, Queensland, Australia.
⁵ Department of Kidney and Transplant Services, Princess Alexandra Hospital, Brisbane, Queensland, Australia.
⁶ Faculty of Medicine, The University of Queensland, Brisbane, Australia.
⁷ Menzies Centre for Health Policy and Economics, The University of Sydney, Sydney, NSW, Australia.
⁸ Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, South Australia, Australia.
⁹ Central and Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital, Adelaide, South Australia, Australia.
¹⁰ Australia and New Zealand Dialysis and Transplant Registry (ANZDATA), South Australian Health & Medical Research Institute (SAHMRI), Adelaide, South Australia, Australia.
¹¹ Central Adelaide Local Health Network, Adelaide, South Australia, Australia.

PMID: 40046821
PMCID: PMC11880764
DOI: 10.1093/ckj/sfaf021

Patient and caregiver involvement in implementing health research in chronic kidney disease: a workshop report

Dale Coghlan et al. Clin Kidney J. 2025.

. 2025 Jan 24;18(3):sfaf021.

doi: 10.1093/ckj/sfaf021. eCollection 2025 Mar.

Authors

Collaborators

workshop investigators:
Adela Yip, Alice Kennard, Allan Blackley, Allison Jaure, Amanda Dominello, Amanda Sluiter, Amandi Hiyare, Amber Williamson, Amy Luchterhand, Anastasia Hughes, Andrea Viecelli, Andrew Currey, Angela Rejuso, Anh Kieu, Anh Tho Tien, Anita van Zwieten, Annie Conway, Armando Teixeira-Pinto, Bill, Breonny Robson, Brydee Johnson, Carmel Hawley, Chandana Guha, Clarissa Hompas, Dale Coghlan, Darling Rojas-Canales, David J Tunnicliffe, Dominic Keuskamp, Effie Johns, Erandi Hewawasam, Felicity Lord, Fiona Carlisle, Fleur Tuthill, Germaine Wong, Gorjana Radisic, Hayley Candler, Heather Shepherd, Helen Coolican, Henry Pleass, Ieyesha Roberts, Irene Mewburn, Isabelle Haklar, Janelle Colquhoun, Janet Kelly, Jasmin Mazis, Javier Recabarren, Jill Brown, Joy Roberts, Karine Manera, Kathy Strudwick, Kim Nguyen, Luca Torrisi, Madeleine Parker, Madeleine Rapisardi, Martin Howell, Michael Collins, Natalie Brown, Nicky Boulter, Nicole Scholes-Robertson, Noa Amir, Pushparaj Velayudham, Rachel Li, Richard Le Leu, Rick Rapana, Robert Dale, Rosanna Cazzolli, Sadia Jahn, Sally Spence, Seethalakshmi Viswanathan, Shyamsundar Muthuramalingam, Yeoungjee Cho, Verlencia En Ying Chu, Victoria Sinka, Vishal Diwan, Wendy Hoy

Affiliations

¹ Flinders University, Bedford Park, South Australia, Australia.
² Sydney School of Public Health, The University of Sydney, Australia.
³ Centre for Kidney Research, The Children's Hospital at Westmead, Australia.
⁴ Australasian Kidney Trials Network (AKTN), Centre for Health Services Research, Faculty of Medicine, The University of Queensland, Brisbane, Queensland, Australia.
⁵ Department of Kidney and Transplant Services, Princess Alexandra Hospital, Brisbane, Queensland, Australia.
⁶ Faculty of Medicine, The University of Queensland, Brisbane, Australia.
⁷ Menzies Centre for Health Policy and Economics, The University of Sydney, Sydney, NSW, Australia.
⁸ Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, South Australia, Australia.
⁹ Central and Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital, Adelaide, South Australia, Australia.
¹⁰ Australia and New Zealand Dialysis and Transplant Registry (ANZDATA), South Australian Health & Medical Research Institute (SAHMRI), Adelaide, South Australia, Australia.
¹¹ Central Adelaide Local Health Network, Adelaide, South Australia, Australia.

PMID: 40046821
PMCID: PMC11880764
DOI: 10.1093/ckj/sfaf021

No abstract available

PubMed Disclaimer

Conflict of interest statement

None declared.

Figures

**Figure 1:**
Strategies for patient and caregiver involvement in the implementation of CKD research: a thematic schema.

See this image and copyright information in PMC

References

1. Gray-Burrows KA, Willis TA, Foy R et al. Role of patient and public involvement in implementation research: a consensus study. BMJ Qual Saf 2018;27:858–64. 10.1136/bmjqs-2017-006954 - DOI - PMC - PubMed
1. Gutman T, Kelly A, Scholes-Robertson N et al. Patient and caregiver experiences and attitudes about their involvement in research in chronic kidney disease. Clin J Am Soc Nephrol 2022;17:215–27. 10.2215/cjn.05960521 - DOI - PMC - PubMed
1. Kerkhoff AD, Farrand E, Marquez C et al. Addressing health disparities through implementation science—a need to integrate an equity lens from the outset. Implementation Sci 2022;17:13. 10.1186/s13012-022-01189-5 - DOI - PMC - PubMed
1. Proctor E, Silmere H, Raghavan R et al. Outcomes for implementation research: conceptual distinctions, measurement challenges, and research agenda. Adm Policy Ment Health 2011;38:65–76. 10.1007/s10488-010-0319-7 - DOI - PMC - PubMed
1. Damschroder LJ, Reardon CM, Widerquist MAO et al. The updated Consolidated Framework for Implementation Research based on user feedback. Implementation Sci 2022;17:75. 10.1186/s13012-022-01245-0 - DOI - PMC - PubMed

LinkOut - more resources

Full Text Sources
- PubMed Central
- Silverchair Information Systems

Save citation to file

Email citation

Add to Collections

Add to My Bibliography

Your saved search

Create a file for external citation management software

Your RSS Feed

Patient and caregiver involvement in implementing health research in chronic kidney disease: a workshop report

Collaborators

Affiliations

Patient and caregiver involvement in implementing health research in chronic kidney disease: a workshop report

Authors

Collaborators

Affiliations

Conflict of interest statement

Figures

References

LinkOut - more resources

Full Text Sources