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. 2025 Apr;34(2):e70008.
doi: 10.1002/jgc4.70008.

Navigating sexual orientation and gender identity data privacy concerns in United States genetics practices

Kimberly Zayhowski  1   2 , Sarah Roth  3 , M J Westerfield  4 , Makenna A Martin  4 , Kai Blumen  5 , Harris T Bland  4 , Shelly W McQuaid  6 , Kathleen F Mittendorf  7
Affiliations

Navigating sexual orientation and gender identity data privacy concerns in United States genetics practices

Kimberly Zayhowski et al. J Genet Couns. 2025 Apr.
No abstract available

Keywords: LGBTQ+ healthcare; data privacy; electronic medical records; gender identity; genetic counseling; patient confidentiality; sexual orientation; transgender.

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Conflict of interest statement

KFM's spouse is the owner and operator of Lavender Spectrum Health, a private primary care health organization that predominantly serves the TGD population of the Portland‐Vancouver Metro Area (Vancouver, WA, USA), where KFM also provides consultation. KFM reports unrelated institutional salary support from GE Healthcare. KZ has served as a paid consultant for Myriad Genetics, providing expertise on gender inclusivity. The rest of the authors have no conflicts of interest to disclose.

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