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. 2025 Apr;34(2):e70040.
doi: 10.1111/inm.70040.

The Role of Siblings in Caring for Middle-Aged and Older People With Severe Mental Illness: A Scoping Review

Jialiang Cui  1 , Siyuan Guo  1 , Kangwei Xun  2   3 , Wan Sang Kan  4 , Lin Zhang  5 , Xin He  6 , Renxing Chen  7   8 , Na Chen  1
Affiliations

The Role of Siblings in Caring for Middle-Aged and Older People With Severe Mental Illness: A Scoping Review

Jialiang Cui et al. Int J Ment Health Nurs. 2025 Apr.

Abstract

The intersection of severe mental illness (SMI) and ageing poses significant health and psychosocial challenges for middle-aged and older adults with SMI. Informal care from siblings can be crucial for this group, who are less likely to have the involvement of spouses or children in their ageing. Despite growing interest in sibling support within mental health research, there is a lack of comprehensive understanding regarding siblings' roles in caring for their ageing relatives with SMI. We conducted a scoping review following Arksey and O'Malley's approach and reported results using the PRISMA-ScR guidelines. Identifying 28 English-language studies published between 2000 and 2024 from PubMed, Scopus, PsycINFO, Ovid MEDLINE and ProQuest, we synthesised key themes concerning the involvement of siblings in caring for individuals with SMI. The findings reveal a widespread willingness among siblings to provide care, though they often adopt a cautious approach. Many siblings feel unprepared to assume parental roles in long-term care, showing reluctance to engage in regular, intensive daily care activities. The extent of their involvement, its impact and their coping strategies are intricately linked to (1) the triangular relationship among parents and siblings with and without SMI, (2) socio-economic status and emotional and educational resources and (3) socio-cultural values. This review contributes to the development of scholarship by identifying critical directions for future research, practice and policy.

Keywords: ageing care; middle‐aged; older people; scoping review; severe mental illness; siblings.

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Conflict of interest statement

The authors declare no conflicts of interest.

Figures

FIGURE 1
FIGURE 1
Flowchart of the review.
See this image and copyright information in PMC

References

    1. Arksey, H. , and O'Malley L.. 2005. “Scoping Studies: Towards a Methodological Framework.” International Journal of Social Research Methodology 8, no. 1: 19–32. 10.1080/1364557032000119616. - DOI
    1. Avieli, H. 2020. “How Middle‐Aged Siblings of Adults With Intellectual Disability Experience Their Roles: A Qualitative Analysis.” Journal of Developmental and Physical Disabilities 32, no. 4: 633–651. 10.1007/s10882-019-09710-3. - DOI
    1. Babineau, J. 2014. “Product Review: Covidence (Systematic Review Software).” Journal of the Canadian Health Libraries Association 35, no. 2: 68–71. 10.5596/c14-016. - DOI
    1. Barnable, A. , Gaudine A., Bennett L., and Meadus R.. 2006. “Having a Sibling With Schizophrenia: A Phenomenological Study.” Research and Theory for Nursing Practice 20, no. 3: 247–264. 10.1891/rtnp.20.3.247. - DOI - PubMed
    1. Chen, W. Y. , and Lukens E.. 2011. “Well Being, Depressive Symptoms, and Burden Among Parent and Sibling Caregivers of Persons With Severe and Persistent Mental Illness.” Social Work in Mental Health 9, no. 6: 397–416. 10.1080/15332985.2011.575712. - DOI

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