Unveiling the hidden pain and daily struggles of individuals with a venous leg ulcer: a thematic analysis

Abstract

Aim: This study aimed to explore the experiences of pain among individuals living with venous leg ulcers (VLUs), focusing on how pain was described, its impact on daily living, and the coping strategies employed by them.

Materials and methods: A secondary qualitative analysis was conducted using data from a previous study on VLU self-management following nurse-led patient education. The original study employed a constructivist grounded theory approach, while this secondary analysis utilized Braun and Clarke's thematic analysis methodology. Semi-structured interviews from 22 participants were analyzed to identify emergent themes related to pain. MAXQDA® software was used to ensure traceability of coding, and rigor was ensured through triangulation and reflexive memos.

Results: Three themes emerged: (1) Description of Wound-Related Pain where participants described pain as persistent, multifaceted, and often excruciating, using terms such as "burning" and "stinging." Pain intensity varied across individuals, with some comparing it to childbirth. (2) Impact on Daily Living where pain considerably affected emotional well-being, mobility, social interactions, and sleep. Many participants experienced emotional exhaustion, frustration, and social isolation due to their condition. (3) Pain Management Strategies where participants used both pharmacological (e.g., paracetamol, tramadol) and non-pharmacological methods (e.g., leg elevation, self-hypnosis) for pain relief. The role of healthcare providers was essential, though some participants felt their pain was inadequately addressed.

Conclusion: VLU-associated pain is a prevalent and debilitating aspect of individuals' lives, impacting both physical and psychological health. Comprehensive pain management strategies that integrate both pharmacological and psychosocial approaches should be enhanced to improve patient outcomes.

Keywords: Pain; Psychological impact; Self-management; Thematic analysis; Venous leg ulcer.