Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2025 Apr 1;8(4):e257704.
doi: 10.1001/jamanetworkopen.2025.7704.

Development of Common Data Elements for Organ Transplantation

Lisa M McElroy  1   2 , Ursula Rogers  1 , Liz Nichols  1 , Nrupen A Bhavsar  1   3 , Tyler Schappe  3 , Jessica Harding  4 , Alexandra T Strauss  5 , Elisa J Gordon  6 , Katie Ross-Driscoll  7 , Rhiannon Deirhoi-Reed  8 , Norine W Chan  1 , Jackie B Henson  9 , Yue Harn Ng  10 , Dave J Taber  11 , Adam J Milam  12 , Jesse D Schold  13 , Juan Carlos Caicedo  14 , Andrew B Adams  15 , Rachel E Patzer  7 , Samuel I Berchuck  3 , Roland Matsouaka  3 , Jennifer Gagnon  1 , Allan D Kirk  1
Affiliations

Development of Common Data Elements for Organ Transplantation

Lisa M McElroy et al. JAMA Netw Open. .
No abstract available

Plain language summary

This cohort study examines the validity of an electronic health record data model for organ transplantation.

PubMed Disclaimer

Conflict of interest statement

Conflict of Interest Disclosures: Dr McElroy reported receiving grants from American Surgical Association Foundation and CareDx during the conduct of the study. Dr Schappe reported receiving grants from National Institutes of Health (NIH) and Robert Wood Johnson Foundation during the conduct of the study. Dr Strauss reported receiving grant K08DK133638 from NIH during the conduct of the study. Dr Reed reported receiving grants from United Therapeutics and NIH outside the submitted work. Dr Schold reported being the chair of the United Network for Organ Sharing data advisory committee outside the submitted work. Dr Patzer reported receiving nonfinancial support from Vital outside the submitted work. No other disclosures were reported.

Figures

Figure.
Figure.. Consortium for the Holistic Assessment of Risk in Transplant Common Data Model Organization
Individual components of patient and study identification numbers. ID indicates identification.
See this image and copyright information in PMC

References

    1. Health Resources and Services Administration . HRSA announces organ procurement and transplantation network modernization initiative. May 2023. Accessed June 30, 2024. https://www.hrsa.gov/optn-modernization/march-2023
    1. Cho S, Mohan S, Husain SA, Natarajan K. Expanding transplant outcomes research opportunities through the use of a common data model. Am J Transplant. 2018;18(6):1321-1327. doi:10.1111/ajt.14892 - DOI - PMC - PubMed
    1. McElroy LM, Reed RD, Gordon E, et al. . CHART: harmonizing data for research, transparency and equity. Ann Surg. 2025;281(3):373-375. doi:10.1097/SLA.0000000000006410 - DOI - PMC - PubMed
    1. Hripcsak G, Mirhaji P, Low AF, Malin BA. Preserving temporal relations in clinical data while maintaining privacy. J Am Med Inform Assoc. 2016;23(6):1040-1045. doi:10.1093/jamia/ocw001 - DOI - PMC - PubMed
    1. Schappe T, McElroy LM, Ogundolie M, Matsouaka R, Rogers U, Bhavsar NA. A data pipeline for secure extraction and sharing of social determinants of health. PLoS One. 2025;20(1):e0317215. doi:10.1371/journal.pone.0317215 - DOI - PMC - PubMed