Tic-Talk: Voices on Tourette's Labelling

Giulia Raffaele¹, Osman Malik², Seonaid Anderson³, Lauren Corcoran⁴, Andreas Hartmann⁵, Davide Martino^{6

7}, Nanette Mol Debes^{8

9}, Kirsten R Müller-Vahl¹⁰, Christelle Nilles¹¹, Tamara Pringsheim⁶, Sara Sopena⁴, Natalia Szejko^{6

10

12}, Owen Tasmin⁴, Kinga K Tomczak¹³, Tammy Hedderly^{1

4}

Affiliations

¹ GKT School of Medical Education, King's College London, London, UK.
² Department of Children's Neuroscience, Evelina London Children's Hospital, Guys and St Thomas National Health Service Trust and South London and Maudsley National Health Service Trust, London, UK.
³ Neuro-Diverse.Org, Brussels, Belgium.
⁴ Evelina London Children's Hospital, Guy's and St Thomas Trust and King's College London, London, UK.
⁵ Centre de Référence National Maladie Rare 'Syndrome Gilles de la Tourette', DMU Neurosciences, AP-HP, Sorbonne Université, Groupe Hospitalier Pitié-Salpêtrière, Paris, France.
⁶ Department of Clinical Neurosciences, University of Calgary, Calgary, Alberta, Canada.
⁷ Hotchkiss Brain Institute, University of Calgary, Calgary, Alberta, Canada.
⁸ Department of Pediatrics, Copenhagen University Hospital-Herlev and Gentofte, Herlev, Denmark.
⁹ Department of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark.
¹⁰ Department of Psychiatry, Social Psychiatry and Psychotherapy, Hannover Medical School, Hannover, Germany.
¹¹ Department of Neurology, Hôpital Fondation Rothschild, Paris, France.
¹² Department of Bioethics, Medical University of Warsaw, Warsaw, Poland.
¹³ Department of Neurology, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts, USA.

Giulia Raffaele et al. Mov Disord Clin Pract. 2025 Jul.

. 2025 Jul;12(7):917-921.

doi: 10.1002/mdc3.70110. Epub 2025 May 2.

¹ GKT School of Medical Education, King's College London, London, UK.
² Department of Children's Neuroscience, Evelina London Children's Hospital, Guys and St Thomas National Health Service Trust and South London and Maudsley National Health Service Trust, London, UK.
³ Neuro-Diverse.Org, Brussels, Belgium.
⁴ Evelina London Children's Hospital, Guy's and St Thomas Trust and King's College London, London, UK.
⁵ Centre de Référence National Maladie Rare 'Syndrome Gilles de la Tourette', DMU Neurosciences, AP-HP, Sorbonne Université, Groupe Hospitalier Pitié-Salpêtrière, Paris, France.
⁶ Department of Clinical Neurosciences, University of Calgary, Calgary, Alberta, Canada.
⁷ Hotchkiss Brain Institute, University of Calgary, Calgary, Alberta, Canada.
⁸ Department of Pediatrics, Copenhagen University Hospital-Herlev and Gentofte, Herlev, Denmark.
⁹ Department of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark.
¹⁰ Department of Psychiatry, Social Psychiatry and Psychotherapy, Hannover Medical School, Hannover, Germany.
¹¹ Department of Neurology, Hôpital Fondation Rothschild, Paris, France.
¹² Department of Bioethics, Medical University of Warsaw, Warsaw, Poland.
¹³ Department of Neurology, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts, USA.

No abstract available

Keywords: Tourette syndrome; diagnostic labelling; movement disorders; neurodiversity; tics.

Figures

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