Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
[Preprint]. 2025 Apr 14:2025.04.10.25325602.
doi: 10.1101/2025.04.10.25325602.

Long-Term Recall of Amyloid PET Results

Maria Scanlan  1 , Hunter Heigert  1 , Ryan A Townley  1 , Abdulaziz Almahgraby  1 , Mickeal N Key  1 , Jill K Morris  1 , Jeffrey M Burns  1 , Eric D Vidoni  1
Affiliations

Long-Term Recall of Amyloid PET Results

Maria Scanlan et al. medRxiv. .

Abstract

We assessed long-term recall and perceived impact of amyloid PET results among 92 cognitively normal adults who received structured result disclosure 6-9 years earlier. Two-thirds correctly recalled their result; only three misremembered the result as the opposite of what was communicated. Participants reported limited behavior change, though those with elevated scans more often endorsed lifestyle modifications. Perceived AD risk aligned with scan status but did not appear to cause lasting psychological distress. Most participants, regardless of result, viewed the experience positively and would undergo testing again. These findings support the long-term acceptability of disclosing amyloid PET results.

PubMed Disclaimer

References

    1. Cutler SJ. Worries about getting Alzheimer’s: who’s concerned? Am J Alzheimers Dis Other Demen. 2015. Sep;30(6):591–8. - PMC - PubMed
    1. As Society. Over half of people fear dementia diagnosis, 62 per cent think it means ‘life is over’2016: Available from: https://www.alzheimers.org.uk/news/2024-11-22/over-half-people-fear-deme....
    1. Watson R, Sanson-Fisher R, Bryant J, Mansfield E. Dementia is the second most feared condition among Australian health service consumers: results of a cross-sectional survey. BMC Public Health. 2023. May 12;23(1):876. - PMC - PubMed
    1. Burgener SC, Buckwalter K, Perkhounkova Y, et al. Perceived stigma in persons with early-stage dementia: Longitudinal findings: Part 1. Dementia (London). 2015. Sep;14(5):589–608. - PubMed
    1. Burgener SC, Buckwalter K, Perkhounkova Y, Liu MF. The effects of perceived stigma on quality of life outcomes in persons with early-stage dementia: Longitudinal findings: Part 2. Dementia (London). 2015. Sep;14(5):609–32. - PubMed

Publication types

LinkOut - more resources