Children's experiences of living with their mental ill-health - a scoping review

Abstract

Purpose: This study aims to identify and summarize existing qualitative empirical research on children's experiences of living with their mental ill-health.

Methods: A scoping review with a systematic search of the databases PubMed, CINAHL, and PsychINFO was conducted. The search generated 9,864 studies, which were screened by title, abstract, and full text.

Results: Forty articles were included comprising 826 children aged 8-19 years. The key findings were described in four themes: Identifying oneself with mental ill-health, Managing suffering and daily challenges, Seeking supportive and caring relationships and Navigating a complex school environment. Being identified with mental ill-health brought challenges for children's everyday struggles. Their own coping strategies as well as supportive relationships with friends and adults were important. However, the balance between support and stress was complex.

Conclusions: Children have a desire to manage and comprehend their complex everyday lives of living with mental ill-health and wish for supported yet independent decision-making. Attitudes of friends, adults and professionals are important in providing understanding and non-judgemental support, valuable for children's well-being. Open conversations about mental health and providing accessible, child-centred interventions based on the needs expressed by children are necessary. This study contributes to the literature by emphasizing the central role of children's voices in matters of mental ill-health.

Keywords: Children; Well-being; lived experiences; mental ill-health; qualitative research; scoping review.

Figure 1.

Flow chart of the literature search and screening according to PRISMA (Tricco et al., 2018).

Figure 2.

Overview of themes and subthemes.