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. 2025 May;17(3):e70014.
doi: 10.1111/luts.70014.

Quality of Life After Augmentation Enterocystoplasty in Children

Alicia Gómez Sánchez  1 , Lara Merino Mateo  2 , Cristina Tordable Ojeda  1 , Sara M Proaño Landázuri  1 , Daniel Cabezalí Barbacho  1 , Andrés Gómez Fraile  1
Affiliations

Quality of Life After Augmentation Enterocystoplasty in Children

Alicia Gómez Sánchez et al. Low Urin Tract Symptoms. 2025 May.

Abstract

Objectives: To evaluate outcomes following bladder augmentation in children at a specialized third-level center concerning quality of life (QoL), continence status, and sexual function.

Methods: The study population included bladder augmented patients treated over the last 25 years. We established contact with them and emailed an online survey with three validated questionnaires: QoL (EQ-5D-5L), incontinence (ICIQ-SF) and sexual function (FSH/FSM2).

Results: Twenty-four patients, aged between 9 and 44, answered the questionnaire. Among respondents, 54.2% declared experiencing some problem in one or more of the five evaluated dimensions. The mean EQ-VAS score was 80 out of 100, while the mean EQ-5D-5L index was 0,845 out of 1. Based on the ICIQ-SF questionnaire, 58.3% of patients were classified as incontinent. Regarding the bother scale (0-10), the mean score was 4.7 ± 3. Among the 18 patients old enough to answer the sexual function questionnaire, 11 (61.1%) described a low or nonexistent level of sexual satisfaction. Among the male cluster, the average score on the FSH questionnaire was 10.95 ± 6.78 (scale 2-24), while in the female cohort the average score on the FSM-2 questionnaire was 21.5 ± 9.64 (scale 2-32).

Conclusions: Despite the high complication rate and the presence of some degree of incontinence or sexual dysfunction in nearly 60% of patients undergoing bladder augmentation in childhood, our cohort exhibits relatively good QoL scores when compared to those reported for the general population.

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References

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