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. 2023 Jun;86(6):441-450.
doi: 10.1177/03080226231154459. Epub 2023 Apr 21.

Appreciating the experience of multiple sclerosis fatigue

Toni Van Denend  1 , Maureen Gecht-Silver  2 , Jacqueline Kish  3 , Matthew Plow  4 , Katharine Preissner  1
Affiliations

Appreciating the experience of multiple sclerosis fatigue

Toni Van Denend et al. Br J Occup Ther. 2023 Jun.

Abstract

Introduction: Fatigue is one of the most common symptoms experienced by people with multiple sclerosis (MS) and can have a significant negative impact on participation in valued roles and activities. Understanding and supporting the management of MS fatigue is a priority to promote participation in life roles. This study explored how participants with MS who were enrolled in a fatigue management randomized clinical trial describe and explain their fatigue experience using a secondary qualitative analysis of interventionists' treatment notes.

Method: Clinical documentation including the subjective and objective portions of 85 treatment notes were collected and analyzed using a qualitative research design with multiphase coding.

Results: Four major themes were identified including Fatigue Nature, Struggle, and Responding to the Reality of Fatigue with an overarching identified theme of Impact on Participation. Under the major themes, subthemes (11 total) were also identified and provided nuanced detail into each theme.

Conclusion: People with MS fatigue describe their experience in a variety of ways. Findings will support occupational therapy practitioners to enhance empathy, understanding, and collaboration when working with clients with MS fatigue.

Keywords: Fatigue; multiple sclerosis; participation; qualitative research; self-management.

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Conflict of interest statement

The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

References

    1. American Occupational Therapy Association (2020) Occupational Therapy Practice Framework: Domain and Process, 4th edn. American Journal of Occupational Therapy 74: 7412410010. - PubMed
    1. Arewasikporn A, Turner AP, Alschuler KN, et al.. (2018) Cognitive and affective mechanisms of pain and fatigue in multiple sclerosis. Health Psychology 37: 544–552. - PMC - PubMed
    1. Barlow J, Turner A, Edwards R, et al.. (2009) A randomised controlled trial of lay-led self-management for people with multiple sclerosis. Patient Education and Counseling 77: 81–89. - PubMed
    1. Baum CM, Christiansen CH, Bass JD. (2015) The Person-Environment-Occupation-Performance (PEOP) model. In: Christiansen CH, Baum CM, Bass JD. (eds) Occupational Therapy: Performance, Participation, and Well-Being. Thorofare, NJ: SLACK Incorporated, pp.49–56.
    1. Billones R, Liwang JK, Butler K, et al.. (2021) Dissecting the fatigue experience: A scoping review of fatigue definitions, dimensions, and measures in non-oncologic medical conditions. Brain, Behavior, & Immunity Health 15: 100266. - PMC - PubMed

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