The Standardized Outcomes in Nephrology (SONG) initiative: a decade of harmonizing patient voices and research in kidney disease

Colm O'Reilly¹, Jonathan C Craig², Younghee Cho³, Sally Crowe⁴, John S Gill⁵, Brenda Hemmelgarn⁶, Martin Howell⁷, Anastasia Hughes⁷, Angela Ju⁷, Karine Manera⁷, Braden Manns⁸, Roberto Pecoits-Filho⁹, Benedicte Sautenet¹⁰, Nicole Scholes-Robertson⁷, Armando Teixeira-Pinto⁷, Peter Tugwell¹¹, Wim Van Biesen¹², Andrea K Viecelli¹³, Angela Yee-Moon Wang¹⁴, Wolfgang C Winkelmayer¹⁵, Germaine Wong⁷, Chandana Guha⁷, Allison Jaure⁷

Affiliations

¹ Sydney School of Public Health, The University of Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, New South Wales, Australia. Electronic address: colm.oreilly@sydney.edu.au.
² College of Medicine and Public Health, Flinders University, Adelaide, Australia.
³ Centre for Kidney Disease Research, Translational Research Institute, Brisbane, Australia; Faculty of Medicine, University of Queensland at Princess Alexandra Hospital, Brisbane, Australia.
⁴ Crowe Associates, London, UK.
⁵ Division of Nephrology, University of British Columbia, Vancouver, British Columbia, Canada.
⁶ Department of Medicine, Faculty of Medicine & Dentistry, University of Alberta, Edmonton, Alberta, Canada.
⁷ Sydney School of Public Health, The University of Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, New South Wales, Australia.
⁸ Department of Medicine, University of Calgary, Calgary, Alberta, Canada; Department of Community Health Sciences, University of Calgary, Calgary, Alberta, Canada.
⁹ Department of Internal Medicine, School of Medicine, Pontifícia Universidade Católica do Paraná, Curitiba, Brazil; Arbor Research Collaborative for Health, Ann Arbor, Michigan, USA.
¹⁰ Department of Nephrology, Hopital Bretonneau, Centre Hospitalier Régional Universitaire de Tours, Tours, France; Institut national de la santé et de la recherche médicale (INSERM), methodS in Patient-centered outcomes & HEalth ResEarch (SPHERE) U1246 Université de Tours, Université de Nantes, Tours, France.
¹¹ Bruyère Health Research Institute, Ottawa, Ontario, Canada; Department of Medicine, School of Epidemiology and Public Health, University of Ottawa, Ottawa, Ontario, Canada.
¹² Renal Division, Ghent University Hospital, Ghent, Belgium.
¹³ Faculty of Medicine, University of Queensland at Princess Alexandra Hospital, Brisbane, Australia.
¹⁴ Department of Renal Medicine, Singapore General Hospital, Duke-National University of Singapore (NUS) Academic Medical Center, Singapore.
¹⁵ Selzman Institute for Kidney Health, Section of Nephrology, Baylor College of Medicine, Houston, Texas, USA.

PMID: 40404256
DOI: 10.1016/j.kint.2025.02.016

Editorial

The Standardized Outcomes in Nephrology (SONG) initiative: a decade of harmonizing patient voices and research in kidney disease

Colm O'Reilly et al. Kidney Int. 2025 Jun.

. 2025 Jun;107(6):955-958.

doi: 10.1016/j.kint.2025.02.016.

Authors

Affiliations

¹ Sydney School of Public Health, The University of Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, New South Wales, Australia. Electronic address: colm.oreilly@sydney.edu.au.
² College of Medicine and Public Health, Flinders University, Adelaide, Australia.
³ Centre for Kidney Disease Research, Translational Research Institute, Brisbane, Australia; Faculty of Medicine, University of Queensland at Princess Alexandra Hospital, Brisbane, Australia.
⁴ Crowe Associates, London, UK.
⁵ Division of Nephrology, University of British Columbia, Vancouver, British Columbia, Canada.
⁶ Department of Medicine, Faculty of Medicine & Dentistry, University of Alberta, Edmonton, Alberta, Canada.
⁷ Sydney School of Public Health, The University of Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, New South Wales, Australia.
⁸ Department of Medicine, University of Calgary, Calgary, Alberta, Canada; Department of Community Health Sciences, University of Calgary, Calgary, Alberta, Canada.
⁹ Department of Internal Medicine, School of Medicine, Pontifícia Universidade Católica do Paraná, Curitiba, Brazil; Arbor Research Collaborative for Health, Ann Arbor, Michigan, USA.
¹⁰ Department of Nephrology, Hopital Bretonneau, Centre Hospitalier Régional Universitaire de Tours, Tours, France; Institut national de la santé et de la recherche médicale (INSERM), methodS in Patient-centered outcomes & HEalth ResEarch (SPHERE) U1246 Université de Tours, Université de Nantes, Tours, France.
¹¹ Bruyère Health Research Institute, Ottawa, Ontario, Canada; Department of Medicine, School of Epidemiology and Public Health, University of Ottawa, Ottawa, Ontario, Canada.
¹² Renal Division, Ghent University Hospital, Ghent, Belgium.
¹³ Faculty of Medicine, University of Queensland at Princess Alexandra Hospital, Brisbane, Australia.
¹⁴ Department of Renal Medicine, Singapore General Hospital, Duke-National University of Singapore (NUS) Academic Medical Center, Singapore.
¹⁵ Selzman Institute for Kidney Health, Section of Nephrology, Baylor College of Medicine, Houston, Texas, USA.

PMID: 40404256
DOI: 10.1016/j.kint.2025.02.016

No abstract available

Keywords: chronic kidney disease; clinical trials; core outcome sets; patient-centered research.

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The Standardized Outcomes in Nephrology (SONG) initiative: a decade of harmonizing patient voices and research in kidney disease

Affiliations

The Standardized Outcomes in Nephrology (SONG) initiative: a decade of harmonizing patient voices and research in kidney disease

Authors

Affiliations

Publication types

LinkOut - more resources

Full Text Sources