The impact of the reaction to diagnosis on sibling relationship: a study on parents and adult siblings of people with disabilities
- PMID: 40417029
- PMCID: PMC12101125
- DOI: 10.3389/fpsyg.2025.1551953
The impact of the reaction to diagnosis on sibling relationship: a study on parents and adult siblings of people with disabilities
Abstract
Objective: Building on Bowlby's attachment theory and Marvin and Pianta's framework, the current study investigated the role of the resolution of the diagnosis as a potential protective factor in shaping the quality of affective sibling relationships. The study examined whether the typically developing (TD) siblings' resolution of the diagnosis of their brother/sister with a disability would predict the quality of their affective relationship in terms of closeness, conflict, jealousy, self-marginalization, and worry (HP1). The potential predictive role of parental resolution on typically developing sibling resolution has been investigated (HP2). In addition, we explored whether being an older vs. younger typically developing sibling would impact the resolution of the diagnosis and the quality of the affective sibling relationship.
Methods: A total of 365 parent-sibling dyads [parents: M age (SD) = 51.2 (6.95) years, age range = 25-64 years; mothers = 78.4%; TD siblings: M age (SD) = 23.2 (3.60) years, age range = 18-39 years; females = 53.7%] from families of individuals with neurodevelopmental disorders or physical disabilities filled out the e-survey (CE n° 92,949/2,023).
Results: The results supported both hypotheses, highlighting the potential protective role of typically developing siblings' resolution of the diagnosis in fostering high-quality sibling relationships in terms of high closeness and low conflict, jealousy, self-marginalization, and worry. In addition, parental resolution of the diagnosis emerged as a potential predictor of typically developing siblings' resolution, supporting the intergenerational transmission of internal working models. Regarding the research question (RQ), younger typically developing siblings reported higher resolution scores than their older counterparts, suggesting that typically developing sibling birth order may shape the reaction to the diagnosis process.
Conclusion: The results underscored the importance of systemic interventions that devote attention not only to parental resolution but also to that of typically developing siblings. Future research should deepen the role played by socio-demographic factors and long-term outcomes on typically developing siblings' mental health and caregiving duties.
Keywords: disability; parents; reaction to diagnosis; resolution; sibling; sibling relationship.
Copyright © 2025 Lecciso, Martis, Antonioli and Levante.
Conflict of interest statement
The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.
Figures
Similar articles
-
Parentification, distress, and relationship with parents as factors shaping the relationship between adult siblings and their brother/sister with disabilities.Front Psychiatry. 2023 Jan 18;13:1079608. doi: 10.3389/fpsyt.2022.1079608. eCollection 2022. Front Psychiatry. 2023. PMID: 36741565 Free PMC article.
-
Siblings of individuals with autism or Down syndrome: effects on adult lives.J Intellect Disabil Res. 2007 Sep;51(Pt 9):682-96. doi: 10.1111/j.1365-2788.2007.00954.x. J Intellect Disabil Res. 2007. PMID: 17845237
-
Emotion regulation in context: the jealousy complex between young siblings and its relations with child and family characteristics.Child Dev. 2002 Mar-Apr;73(2):581-600. doi: 10.1111/1467-8624.00425. Child Dev. 2002. PMID: 11949910
-
Siblings of Persons with Disabilities: A Systematic Integrative Review of the Empirical Literature.Clin Child Fam Psychol Rev. 2025 Mar;28(1):209-253. doi: 10.1007/s10567-024-00502-6. Epub 2024 Oct 16. Clin Child Fam Psychol Rev. 2025. PMID: 39414751 Free PMC article.
-
Adult sibling experience, roles, relationships and future concerns - a review of the literature in learning disabilities.J Clin Nurs. 2011 Oct;20(19-20):2837-53. doi: 10.1111/j.1365-2702.2010.03530.x. Epub 2011 Mar 2. J Clin Nurs. 2011. PMID: 21366739 Review.
Cited by
-
The Quality of the Parent-Child Relationship in the Context of Autism: The Role of Parental Resolution of the Child's Diagnosis, Parenting Stress, and Caregiving Burden.Eur J Investig Health Psychol Educ. 2025 Jul 18;15(7):142. doi: 10.3390/ejihpe15070142. Eur J Investig Health Psychol Educ. 2025. PMID: 40709975 Free PMC article.
References
-
- Ammaniti M. (2008). Pensare Per Due: Nella Mente Delle Madri. Bari: Laterza and Figli Spa.
-
- Bhattashali A., Ostrosky M. M., Monda-Amaya L. (2018). Perceptions of typically developing children in India about their siblings with disabilities. Int. J. Incl. Educ. 22, 1257–1271. 10.1080/13603116.2017.1420253 - DOI
-
- Biringen Z., Derscheid D., Vliegen N., Closson L., Easterbrooks M. A. (2014). Emotional availability (EA): theoretical background, empirical research using the EA scales, and clinical applications. Dev. Rev. 34, 114–167. 10.1016/j.dr.2014.01.002 - DOI
LinkOut - more resources
Full Text Sources