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. 2025 Sep;18(5):443-459.
doi: 10.1007/s40271-025-00745-7. Epub 2025 Jun 2.

Engaging Underserved Populations in Health Preference Research: Challenges and Strategies

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Engaging Underserved Populations in Health Preference Research: Challenges and Strategies

Paula Sinead Donnelly et al. Patient. 2025 Sep.

Abstract

Health preference research plays a critical role in shaping healthcare policy and decision-making; however the underrepresentation of underserved populations challenges the validity and reliability of preference estimates. Despite efforts to diversify recruitment, health preference studies often have limited demographic diversity and non-representative sampling, leading to potentially biased findings that overlook the preferences of underserved populations. We discuss the importance of engaging underserved populations in health preference research from both ethical and research perspectives. We identify key challenges to the inclusion of underserved groups and outline strategies to address them, illustrating these with examples where possible. By prioritising inclusive and flexible methodologies, health preference researchers can generate more representative data, ensuring that estimates reflect the diverse needs and values of all populations. Ultimately, these efforts will support the development of more equitable, evidence-based, and impactful healthcare policies.

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Conflict of interest statement

Declarations. Funding: The time dedicated by the OPEN Health co-authors (MB, HP, DM) to write and edit the manuscript, as well as the professional editor (CD), was funded through the Scientific Office buyout fund at OPEN Health. PSD is funded by a PhD studentship, funded by the Department for the Economy, Northern Ireland. Conflicts of Interest: MB is an editorial board member of The Patient and, as such, was not involved in the selection of peer reviewers for the manuscript nor any of the subsequent editorial decisions. All other authors have no conflicts of interest that are directly related to the content of this manuscript. Ethical Approval: Not applicable. Consent to Participate: Not applicable. Consent for Publication: Not applicable. Availability of Data and Material: Not applicable. Code Availability: Not applicable. Authors’ Contributions: All authors contributed to the conception and design of the paper. MB is senior author. PSD wrote the first draft of the manuscript. All authors contributed to its intellectual content, reviewed previous versions, and provided comments. All authors read and approved the final manuscript.

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