Wheelchair priorities of brain injury survivors and their caregivers: a cohort study

Abstract

Purpose: The wheelchair provision process can be a challenging experience for individuals who have sustained an acquired brain injury. This study aimed to gain a deeper understanding of the wheelchair priorities of new wheelchair users, determine how self-efficacy and social support may influence their experiences, and describe changes in social participation during the transition from inpatient rehabilitation to home.

Materials and methods: Individuals with an acquired brain injury (n = 43) and their caregivers completed a structured interview before discharge; ∼50% were interviewed again at 4 months post-discharge (n = 21).

Results: Wheelchair features rated as most important before discharge included fit, safety, comfort, and effectiveness. At the 4-month follow-up, the same items remained important, but ease of use and durability also became more important. Analysis comparing importance and performance indicated the focus areas at 4 month follow up were fit, safety, and dimensions. The subjects rated their self-efficacy (34.2/40) and perceived social support (6.3/7) as very high. Social participation improved from discharge to follow-up; however, this sample of wheelchair users continued to experience decreased satisfaction with social roles and responsibilities four months after returning home.

Conclusion: For this sample of first-time wheelchair users, fit, safety, comfort, and dimensions were the most important components. This information can help guide clinicians as they prescribe wheelchairs for individuals with an acquired brain injury.

Keywords: Stroke; TBI; acquired brain injury; durable medical equipment; importance; wheelchair.