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Multicenter Study
. 2025 Aug;34(8):1249-1253.
doi: 10.17219/acem/207434.

Caregivers' perspectives on long-term cognitive, psychiatric, psychological, and social outcomes in NMDAR encephalitis: Initial findings from the multi-center prospective SAPIENCE study

Marta Duda-Sikuła  1 , Ole Jonas Boeken  2 , Víctor Patricio  3 , Chloe Buttard  4 , Marie Benaiteau  4 , Alvaro Mendes  5 , Jerome Honnorat  4 , Ava Easton  6 , Josep Dalmau  3 , Carsten Finke  2 , Donata Kurpas  1
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Free article
Multicenter Study

Caregivers' perspectives on long-term cognitive, psychiatric, psychological, and social outcomes in NMDAR encephalitis: Initial findings from the multi-center prospective SAPIENCE study

Marta Duda-Sikuła et al. Adv Clin Exp Med. 2025 Aug.
Free article

Abstract

The SAPIENCE study explores the long-term psychological, social, and systemic challenges faced by caregivers of individuals with NMDAR encephalitis. It aims to inform patientand caregiver-centered strategies that support recovery and wellbeing.

Keywords: autoimmune encephalities; multidisciplinary team; patient-centered care; rare diseases.

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