Sexuality and intimacy in the context of palliative and end-of-life care: a scoping review

Abstract

Background: This scoping review identifies what is known about patient/partner sexuality and intimacy needs during end-of-life care and how healthcare professionals' (HCPs) approach these needs.

Methods: Following PRISMA-ScR, articles available in English published between 2010-2024 were screened.

Results: A total of 18 articles were included in the review. Four themes were identified: 1) negative impact of serious illness on sexuality and intimacy, 2) barriers and facilitators to addressing sexuality, 3) tension between expansive and genital-focused approaches to sexuality and intimacy, and 4) a disconnect between patient/partner needs and HCP preparation.

Discussion: Patient/partner sexuality and intimacy needs were consistent across cultural context and over time. HCPs require clear and comprehensive training to improve their ability to address sexuality and intimacy during end-of-life care. Taking an expansive view of sexuality and intimacy during this time may facilitate HCP interventions.

Keywords: hospice care; intimacy; palliative care; sexuality; wellbeing.