Worldwide evaluation of Clinical Practice Strategies (CliPS) for lung involvement in Still's disease within the JIR-CliPS network: a COST action

Maurine Jouret¹, Francisca Aguiar^{2

3}, Charlotte Girard-Guyonvarc'h⁴, Yulia Vyzhga^{5

6}, Filipa Oliveira-Ramos⁷, Cristina Costa Lana⁸, Rahma Guedri^{9

10}, Alain Lefevre-Utile^{11

12}, Djohra Hadef¹³, Juan Manuel Mosquera Angarita¹⁴, Seza Ozen¹⁵, Sezgin Sahin¹⁶, Soad Hashad¹⁷, Karima Daghor-Abbaci¹⁸, Dirk Foell¹⁹, Sophie Georgin-Lavialle^{20

21}, Katerina Theodoropoulou²²; JIR-CLIPS Network

Collaborators, Affiliations

Collaborators

JIR-CLIPS Network:
Konstantinos Pateras, Jovana Paunovic Pantic, Alexandre Belot, Sezgin Sahin, Sara Ganhão, Joan Calzada-Hernández, Lovro Lamot, Ida Dzifa Dey, Eve Smith, Sylvia Kamphuis, Cristina Lanna, Raffaella Carlomagno, Marleen Verkaaik, Chris Pruunsild, Jade Cognard, Amani Mubarak, Natasha Jordan, Belde Kasap Demir, Angela Migowa, Stephen Marks, Seher Sener, Edoardo Marrani, Phil Riley, Selcan Demir, Valentina Natoli, Giedre Januskeviciute, Patricia Costa Reis, Arune Ramanauskiene, Ausra Snipaitiene, Daiva Gorczyca, Jaanika Ilisson, Jacek Postepski, Judith Sánchez-Manubens, Jurgita Marciulynaite, Mejbri Manel, Teresa Giani, Tilmann Kallinich, Yosef Uziel, Zohra Fitouri, Seza Ozen, Marija Jelusic, Margarita Ganeva, Caroline Platt, Vladimir Iacomi, Zeynep Balik, Emil Aliyev, Nastasia Kifer, Dominik Mueller, Andzelika Slegeryte, Helmut Wittkowski, Inès Elhani, Juergen Brunner, Marion Delplanque, Meri Kirijas, Roberta Caorsi, Sonia Carriquí Arenas, Tanja Hinze, Véronique Hentgen, Rim Bourguiba, Mario Sestan, Tamás Constantin, Helen Lachmann, Ghalia Khellaf, Yonatan Butbul, Nuray Aktay Ayaz, Stephanie Ducharme-Benard, Fatih Haşlak, Mr Stefan Backes, Muserref Kasap Cuceoglu, Naiera Assalia, Vafa Guliyeva, Anna Mamutova, Amira Cerimagic, Betul Sozeri, Ezgi Deniz Batu, Michaël Hofer, Ciprian Jurcut, Caroline Vinit, Estíbaliz Iglesias, Mariana Rodrigues, Nadezhda Shapovalova, Natasa Toplak, Marco Gattorno, Rawane Dagher, Ricardo Craveiro Costa, Margarida Faria, Katerina Laskari, Gulcan Ozomay Baykal, Hafize Emine Sönmez, Amila Hadzimuratovic, Gvantsa Jajanidze, Sophie Georgin-Lavialle, Rahma Guedri, Maurine Jouret, Katerina Theodoropoulou, Juan Manuel Mosquera Angarita, Francisca Aguiar, Dirk Foell, Soad Hashad, Djohra Hadef, Alain Lefevre-Utile, Charlotte Girard, Filipa Oliveira Ramos, Karima Daghor-Abbaci, Raquel Faria, Sinisa Savic, Joanne May, Souhaibou Ndongo, Elissar Dagher, Sofia Ferreira Azevedo, Eva Timonet, Philippe Mertz, Wafa Hamdi, Roberta Naddei, Vinay Shivamurthy, Syrine Bellakhal

Affiliations

¹ Pediatric Nephrology, Rheumatology, Dermatology Unit, Hospices Civils de Lyon, Lyon, France.
² Adult and Pediatric Rheumatology Unit, ULS São JoãoYoung, Porto, Portugal.
³ Faculdade de Medicina da Universidade do Porto, Porto, Portugal.
⁴ Division of Rheumatology, Department of Medicine, University Hospital of Geneva, Geneva, Switzerland & Swiss RITA.
⁵ National Pirogov Memorial Medical University, Vinnytsya, Ukraine.
⁶ Division of Rheumatology, The Hospital for Sick Children "SickKids", Toronto, Canada.
⁷ Paediatric Rheumatology Unit, University Hospital ULS Santa Maria, Lisbon School of Medicine, University of Lisbon, Lisbon, Portugal.
⁸ Rheumatology, Medical School of Medicine, Federal University of Minas Gerais State (UFMG), Belo Horizonte, Brazil.
⁹ Faculty of Medicine of Tunis, Peadiatric Rheumatology Unit, Béchir Hamza Children's Hospital, Tunis, Tunisia.
¹⁰ University of Tunis El Manar, Tunis, Tunisia.
¹¹ Département Femme-Mère-Enfant (DFME), Service de Pédiatrie, Lausanne, Switzerland.
¹² Faculté de Biologie et de Médecine de l'Université de Lausanne, Lausanne, Switzerland.
¹³ Faculty of Medicine, Batna 2 University, Batna, Algeria.
¹⁴ Pediatric Rheumatology Unit, Sant Joan de Déu Children's Hospital, Barcelona, Spain.
¹⁵ Department of Pediatrics, Hacettepe University, Ankara, Turkey.
¹⁶ Department of Pediatric Rheumatology, University Cerrahpasa, Istanbul, Turkey.
¹⁷ Department of Pediatric Rheumatology, Tripoli Children Hospital, University of Tripoli, Tripoli, Libya.
¹⁸ Department of Internal Medicine, Algeria Rheumatology and Immunology, Bab El Oued University Hospital Center, University of Algiers, Algiers, Algeria.
¹⁹ Pediatric Rheumatology and Immunology, University Children's Hospital Münster, Münster, Germany.
²⁰ Internal Medicine Department, Sorbonne University, Tenon Hospital, AP-HP, DMU3ID, Paris, France.
²¹ CEREMAIA & ERN RITA, Paris, France.
²² Unit of Pediatric Immunology, Allergology and Rheumatology, Lausanne University Hospital (CHUV) and University of Lausanne (UNIL), Lausanne, Switzerland.

PMID: 40901639
PMCID: PMC12401577
DOI: 10.1093/rap/rkaf073

Worldwide evaluation of Clinical Practice Strategies (CliPS) for lung involvement in Still's disease within the JIR-CliPS network: a COST action

Maurine Jouret et al. Rheumatol Adv Pract. 2025.

. 2025 Jul 3;9(3):rkaf073.

doi: 10.1093/rap/rkaf073. eCollection 2025.

Authors

Collaborators

JIR-CLIPS Network:
Konstantinos Pateras, Jovana Paunovic Pantic, Alexandre Belot, Sezgin Sahin, Sara Ganhão, Joan Calzada-Hernández, Lovro Lamot, Ida Dzifa Dey, Eve Smith, Sylvia Kamphuis, Cristina Lanna, Raffaella Carlomagno, Marleen Verkaaik, Chris Pruunsild, Jade Cognard, Amani Mubarak, Natasha Jordan, Belde Kasap Demir, Angela Migowa, Stephen Marks, Seher Sener, Edoardo Marrani, Phil Riley, Selcan Demir, Valentina Natoli, Giedre Januskeviciute, Patricia Costa Reis, Arune Ramanauskiene, Ausra Snipaitiene, Daiva Gorczyca, Jaanika Ilisson, Jacek Postepski, Judith Sánchez-Manubens, Jurgita Marciulynaite, Mejbri Manel, Teresa Giani, Tilmann Kallinich, Yosef Uziel, Zohra Fitouri, Seza Ozen, Marija Jelusic, Margarita Ganeva, Caroline Platt, Vladimir Iacomi, Zeynep Balik, Emil Aliyev, Nastasia Kifer, Dominik Mueller, Andzelika Slegeryte, Helmut Wittkowski, Inès Elhani, Juergen Brunner, Marion Delplanque, Meri Kirijas, Roberta Caorsi, Sonia Carriquí Arenas, Tanja Hinze, Véronique Hentgen, Rim Bourguiba, Mario Sestan, Tamás Constantin, Helen Lachmann, Ghalia Khellaf, Yonatan Butbul, Nuray Aktay Ayaz, Stephanie Ducharme-Benard, Fatih Haşlak, Mr Stefan Backes, Muserref Kasap Cuceoglu, Naiera Assalia, Vafa Guliyeva, Anna Mamutova, Amira Cerimagic, Betul Sozeri, Ezgi Deniz Batu, Michaël Hofer, Ciprian Jurcut, Caroline Vinit, Estíbaliz Iglesias, Mariana Rodrigues, Nadezhda Shapovalova, Natasa Toplak, Marco Gattorno, Rawane Dagher, Ricardo Craveiro Costa, Margarida Faria, Katerina Laskari, Gulcan Ozomay Baykal, Hafize Emine Sönmez, Amila Hadzimuratovic, Gvantsa Jajanidze, Sophie Georgin-Lavialle, Rahma Guedri, Maurine Jouret, Katerina Theodoropoulou, Juan Manuel Mosquera Angarita, Francisca Aguiar, Dirk Foell, Soad Hashad, Djohra Hadef, Alain Lefevre-Utile, Charlotte Girard, Filipa Oliveira Ramos, Karima Daghor-Abbaci, Raquel Faria, Sinisa Savic, Joanne May, Souhaibou Ndongo, Elissar Dagher, Sofia Ferreira Azevedo, Eva Timonet, Philippe Mertz, Wafa Hamdi, Roberta Naddei, Vinay Shivamurthy, Syrine Bellakhal

Affiliations

¹ Pediatric Nephrology, Rheumatology, Dermatology Unit, Hospices Civils de Lyon, Lyon, France.
² Adult and Pediatric Rheumatology Unit, ULS São JoãoYoung, Porto, Portugal.
³ Faculdade de Medicina da Universidade do Porto, Porto, Portugal.
⁴ Division of Rheumatology, Department of Medicine, University Hospital of Geneva, Geneva, Switzerland & Swiss RITA.
⁵ National Pirogov Memorial Medical University, Vinnytsya, Ukraine.
⁶ Division of Rheumatology, The Hospital for Sick Children "SickKids", Toronto, Canada.
⁷ Paediatric Rheumatology Unit, University Hospital ULS Santa Maria, Lisbon School of Medicine, University of Lisbon, Lisbon, Portugal.
⁸ Rheumatology, Medical School of Medicine, Federal University of Minas Gerais State (UFMG), Belo Horizonte, Brazil.
⁹ Faculty of Medicine of Tunis, Peadiatric Rheumatology Unit, Béchir Hamza Children's Hospital, Tunis, Tunisia.
¹⁰ University of Tunis El Manar, Tunis, Tunisia.
¹¹ Département Femme-Mère-Enfant (DFME), Service de Pédiatrie, Lausanne, Switzerland.
¹² Faculté de Biologie et de Médecine de l'Université de Lausanne, Lausanne, Switzerland.
¹³ Faculty of Medicine, Batna 2 University, Batna, Algeria.
¹⁴ Pediatric Rheumatology Unit, Sant Joan de Déu Children's Hospital, Barcelona, Spain.
¹⁵ Department of Pediatrics, Hacettepe University, Ankara, Turkey.
¹⁶ Department of Pediatric Rheumatology, University Cerrahpasa, Istanbul, Turkey.
¹⁷ Department of Pediatric Rheumatology, Tripoli Children Hospital, University of Tripoli, Tripoli, Libya.
¹⁸ Department of Internal Medicine, Algeria Rheumatology and Immunology, Bab El Oued University Hospital Center, University of Algiers, Algiers, Algeria.
¹⁹ Pediatric Rheumatology and Immunology, University Children's Hospital Münster, Münster, Germany.
²⁰ Internal Medicine Department, Sorbonne University, Tenon Hospital, AP-HP, DMU3ID, Paris, France.
²¹ CEREMAIA & ERN RITA, Paris, France.
²² Unit of Pediatric Immunology, Allergology and Rheumatology, Lausanne University Hospital (CHUV) and University of Lausanne (UNIL), Lausanne, Switzerland.

PMID: 40901639
PMCID: PMC12401577
DOI: 10.1093/rap/rkaf073

No abstract available

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References

1. Petrongari D, Di Filippo P, Misticoni F et al. Lung involvement in systemic juvenile idiopathic arthritis: a narrative review. Diagnostics 202212:3095. - PMC - PubMed
1. Schulert GS, Yasin S, Carey B et al. Systemic juvenile idiopathic arthritis–associated lung disease: characterization and risk factors. Arthritis Rheumatol 2019;71:1943–54. - PMC - PubMed
1. Erkens RGA, Calis JJA, Verwoerd A et al. Recombinant interleukin‐1 receptor antagonist is an effective first‐line treatment strategy in new‐onset systemic juvenile idiopathic arthritis, irrespective of HLA‐DRB1 background and IL1RN variants. Arthritis Rheumatol 2024;76:119–29. - PubMed
1. Nies JF, Schneider U, Krusche M. Rare, rarer, lung involvement in adult-onset Still’s disease: a mini-review. Front Med 2022;9:989777. - PMC - PubMed
1. Ruscitti P, Berardicurti O, Iacono D et al. Parenchymal lung disease in adult onset Still’s disease: an emergent marker of disease severity—characterisation and predictive factors from Gruppo Italiano di Ricerca in Reumatologia Clinica e Sperimentale (GIRRCS) cohort of patients. Arthritis Res Ther 2020;22:151. - PMC - PubMed

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Worldwide evaluation of Clinical Practice Strategies (CliPS) for lung involvement in Still's disease within the JIR-CliPS network: a COST action

Collaborators

Affiliations

Worldwide evaluation of Clinical Practice Strategies (CliPS) for lung involvement in Still's disease within the JIR-CliPS network: a COST action

Authors

Collaborators

Affiliations

References

LinkOut - more resources

Full Text Sources