Guiding principles for adult CNS tumor treatment programs

Vincent Rock¹, Manmeet S Ahluwalia², Matt Anthony³, David Arons⁴, Jean Arzbaecher⁵, Erin Dunbar⁶, Catherine Fraher⁷, Mindy Freund¹, Vinai Gondi⁸, Shanu Khanuja¹, Danielle Leach⁴, Ashlee R Loughan⁹, Al Musella¹⁰, Kathy Oliver¹¹, Kendra Paabo¹², Vinay K Puduvalli¹³, Geri-Dee Shaffer¹⁴, Alissa A Thomas¹⁵, Kimberly Wallgren¹⁶, Jeffrey S Wefel¹³, Jennifer S Yu¹⁷, Gabriel Zada¹⁸, Nicole Willmarth¹, Ralph DeVitto¹

Affiliations

¹ American Brain Tumor Association, Chicago, IL, USA.
² Miami Cancer Institute, Baptist Health South Florida, Miami, FL, USA.
³ Head for the Cure, Kansas City, MO, USA.
⁴ National Brain Tumor Society, Newton, MA, USA.
⁵ University of Illinois at Chicago Medical Center, Chicago, IL, USA.
⁶ Piedmont Brain Tumor Center, Piedmont Atlanta Hospital, Atlanta, GA, USA.
⁷ The Brain Tumour Charity, Fleet, UK.
⁸ Northwestern Medicine Cancer Center Warrenville, Northwestern University Feinberg School of Medicine, Warrenville/Chicago, IL, USA.
⁹ Virginia Commonwealth University, Massey Cancer Center, Mechanicsville, VA, USA.
¹⁰ Musella Foundation, Hewlitt, NY, USA.
¹¹ The International Brain Tumour Alliance, Tadworth, UK.
¹² Brain Tumor Network, Ponte Vedre Beach, FL, USA.
¹³ The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
¹⁴ Southeastern Brain Tumor Foundation, Atlanta, GA, USA.
¹⁵ University of Vermont Medical Center, The University of Vermont Health Network, Burlington, VT, USA.
¹⁶ CERN Foundation, a program of the National Brain Tumor Society, Newton, MA, USA.
¹⁷ Cleveland Clinic, Cleveland, OH, USA.
¹⁸ Keck Medicine of the University of Southern California, Los Angeles, CA, USA.

PMID: 40980442
PMCID: PMC12448407
DOI: 10.1093/noajnl/vdaf169

Review

Guiding principles for adult CNS tumor treatment programs

Vincent Rock et al. Neurooncol Adv. 2025.

. 2025 Aug 4;7(1):vdaf169.

doi: 10.1093/noajnl/vdaf169. eCollection 2025 Jan-Dec.

Authors

Affiliations

¹ American Brain Tumor Association, Chicago, IL, USA.
² Miami Cancer Institute, Baptist Health South Florida, Miami, FL, USA.
³ Head for the Cure, Kansas City, MO, USA.
⁴ National Brain Tumor Society, Newton, MA, USA.
⁵ University of Illinois at Chicago Medical Center, Chicago, IL, USA.
⁶ Piedmont Brain Tumor Center, Piedmont Atlanta Hospital, Atlanta, GA, USA.
⁷ The Brain Tumour Charity, Fleet, UK.
⁸ Northwestern Medicine Cancer Center Warrenville, Northwestern University Feinberg School of Medicine, Warrenville/Chicago, IL, USA.
⁹ Virginia Commonwealth University, Massey Cancer Center, Mechanicsville, VA, USA.
¹⁰ Musella Foundation, Hewlitt, NY, USA.
¹¹ The International Brain Tumour Alliance, Tadworth, UK.
¹² Brain Tumor Network, Ponte Vedre Beach, FL, USA.
¹³ The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
¹⁴ Southeastern Brain Tumor Foundation, Atlanta, GA, USA.
¹⁵ University of Vermont Medical Center, The University of Vermont Health Network, Burlington, VT, USA.
¹⁶ CERN Foundation, a program of the National Brain Tumor Society, Newton, MA, USA.
¹⁷ Cleveland Clinic, Cleveland, OH, USA.
¹⁸ Keck Medicine of the University of Southern California, Los Angeles, CA, USA.

PMID: 40980442
PMCID: PMC12448407
DOI: 10.1093/noajnl/vdaf169

Abstract

Central nervous system (CNS) tumors require specialized care to promote better patient survival outcomes and life quality. Before this paper, there were no published guidelines identifying what constitutes specialized, comprehensive CNS tumor treatment and care in the United States. Consequently, members of several CNS tumor patient advocacy and not-for-profit organizations established a set of Guiding Principles by which adult CNS tumor treatment programs could be evaluated for the availability of specialized services offered. These Guiding Principles for CNS tumor treatment programs are the first tool of its kind in the United States. Patient advocacy and not-for-profit organizations that support the CNS tumor population can use these guiding principles to help patients and their loved ones make more informed decisions about where to seek treatment and care.

Keywords: brain tumors; central nervous system tumors; medical centers; specialized treatment and care; spine tumors; treatment centers.

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References

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Guiding principles for adult CNS tumor treatment programs

Affiliations

Guiding principles for adult CNS tumor treatment programs

Authors

Affiliations

Abstract

References

Publication types