Lost in Transition: Examining Loss to Follow-up in JIA and cSLE

Simran Heera¹, Matthew Sholdice², Julie Herrington^{1

3}, Tania Cellucci^{3

4}, Stephanie Garner⁵, Liane Heale^{3

4}, Mark Matsos⁶, Karen Beattie⁴, Michelle Batthish^{3

4}

Affiliations

¹ School of Rehabilitation Science, McMaster University, Hamilton, ON.
² Faculty of Health Sciences, McMaster University, Hamilton, ON.
³ McMaster Children's Hospital, Hamilton, ON.
⁴ Department of Pediatrics, Division of Rheumatology, McMaster University, Hamilton, ON.
⁵ Department of Medicine, Division of Rheumatology, University of Calgary, Calgary, Alberta.
⁶ Department of Medicine, Division of Rheumatology, McMaster University, Hamilton, ON, Canada.

Simran Heera et al. J Clin Rheumatol. 2025.

. 2025 Sep 22.

doi: 10.1097/RHU.0000000000002276. Online ahead of print.

Simran Heera¹, Matthew Sholdice², Julie Herrington^{1

3}, Tania Cellucci^{3

4}, Stephanie Garner⁵, Liane Heale^{3

4}, Mark Matsos⁶, Karen Beattie⁴, Michelle Batthish^{3

4}

¹ School of Rehabilitation Science, McMaster University, Hamilton, ON.
² Faculty of Health Sciences, McMaster University, Hamilton, ON.
³ McMaster Children's Hospital, Hamilton, ON.
⁴ Department of Pediatrics, Division of Rheumatology, McMaster University, Hamilton, ON.
⁵ Department of Medicine, Division of Rheumatology, University of Calgary, Calgary, Alberta.
⁶ Department of Medicine, Division of Rheumatology, McMaster University, Hamilton, ON, Canada.

No abstract available

Conflict of interest statement

M.B. was supported by a New Investigator Fund from Hamilton Health Sciences. The remaining authors declare no conflict of interest.

1. Selvaag AM, Aulie HA, Lilleby V, et al. Disease progression into adulthood and predictors of long-term active disease in juvenile idiopathic arthritis. Ann Rheum Dis. 2016;75:190–195.
1. Hersh AO, Pang S, Curran ML, et al. The challenges of transferring chronic illness patients to adult care: reflections from pediatric and adult rheumatology at a US academic center. Pediatr Rheumatol Online J. 2009;7:13–13.
1. Felsenstein S, Reiff AO, Ramanathan A. Transition of care and health-related outcomes in pediatric-onset systemic lupus erythematosus. Arthritis Care Res (2010). 2015;67:1521–1528.
1. Toulany A, Willem Gorter J, Harrison M. A call for action: recommendations to improve transition to adult care for youth with complex health care needs. Paediatrics Child Health. 2022;27:297–302.
1. Robertson L. When should young people with chronic rheumatic disease move from paediatric to adult-centred care? Best Pract Res Clin Rheumatol. 2006;20:387–397.