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. 2025 Oct 21;32(10):586.
doi: 10.3390/curroncol32100586.

Integrating Structured Peer Support Pathways for Patients Undergoing Cellular Therapies: Insights from a Participatory Study

Karine Bilodeau  1   2 , Pegah Torabi  2 , Ludovic Tamaro  2 , Sandie Oberoi  3 , Deborah Pascale  3 , Kelley Kilpatrick  4 , David Ogez  5 , Marie-Pascale Pomey  6 , Katia Dumont  2 , Catherine Paquette-Gascon  1   2 , Israel Fortin  3 , Isabelle Fleury  3 , Imran Ahmad  2   7
Affiliations

Integrating Structured Peer Support Pathways for Patients Undergoing Cellular Therapies: Insights from a Participatory Study

Karine Bilodeau et al. Curr Oncol. .

Abstract

Individuals diagnosed with hematological cancer often face an emotionally demanding journey, frequently reporting high levels of distress and unmet needs, including a lack of personalized and emotional support. Our research team co-developed structured support provided by trained Accompanying patients (APs) during key stages of the care pathway for individuals with hematological cancers treated with cellular therapies. This paper presents findings on the anticipated needs that APs can address, their role within the care team, and the key facilitators, challenges, and strategies needed to implement structured peer support. Using a participatory action research approach, three working sessions were conducted with 16 key stakeholders to co-develop the structured support pathways. Data from group discussions (n = 3) underwent thematic analysis to identify essential components for adapting the support offered by APs, as well as the barriers and facilitators to its implementation. Findings show that APs can help address a wide range of practical, emotional, social, and psychological needs while enhancing patient understanding and continuity of care. Participants emphasized the importance of clear role definitions, adequate training, and supportive tools to ensure the safe and effective involvement of APs. Organizational and communication challenges were also identified, along with strategies to promote long-term sustainability. This initiative represents the first structured peer support program tailored to cellular therapies in Canada and offers a promising model to improve patient experience, foster relational continuity, and support cancer survivors across the care continuum.

Keywords: CAR-T; continuity of care; hematological cancer; hematopoietic cell transplantation; implementation; participatory action research; patient engagement; peer support; tailored support; unmet need.

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Conflict of interest statement

The authors declare no conflicts of interest. The funders had no role in the design of the study; in the collection, analyses, or interpretation of data; in the writing of the manuscript; or in the decision to publish the results.

Figures

Figure 1
Figure 1
Reflective cycles during meetings for each working group.
See this image and copyright information in PMC

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