Discontinuing the phenylalamine-restricted diet in young children with PKY. Psychosocial aspects

Abstract

Analysis of questionnaires, informal group meetings, and individual interviews with parents and their children with phenylketonuria gave insight on the attitudes and experiences surrounding discontinuance of the phenylalanine-restricted diet. The investigation identified important aspects of changing social interactions as termination of the restricted diet progressed. The study suggests that preparatory discussions with parents and children prior to the change in diet should be held to avoid undue stress and conflict in such families.