The quality of care and symptom control--the effects on the terminal phase of ALS/MND

Abstract

The quality of care in the terminal phase of ALS/MND depends critically on the palliative care provided throughout the disease process. A retrospective review of 52 patients shows that patients with multiple symptoms and care needs can be cared for, and die, at home. To ensure that the care of patients is co-ordinated and allows patients and family to be cared for where they wish, a team approach is required. A co-ordinated team approach, involving health care, social services and voluntary groups, is described.