Cancer surveillance in ulcerative colitis: a survey of patients' knowledge

Abstract

Background and study aims: The present study aimed to investigate the level of knowledge concerning colorectal carcinoma and its screening and treatment in a group of patients with long-standing and extensive ulcerative colitis.

Patients and methods: A postal questionnaire was sent to 61 patients with long-standing and extensive ulcerative colitis. They were asked about their risk of carcinoma, about the existence of screening facilities, and about the treatment of colorectal carcinoma.

Results: Forty-three completed questionnaires were returned. Eighty-six per cent of patients were aware of the increased risk of carcinoma. Only 44% knew that it was possible to screen for colorectal carcinoma. Forty-seven per cent of patients were unaware that carcinoma detected at screening would require surgical removal.

Conclusion: Large numbers of patients are unaware of the existence of screening facilities for colorectal cancer, and are ignorant of the treatment of the disease. Increased public information is required to improve compliance with screening programmes, and to enable patients to take part in decisions about their management.