Life situation and problems as reported by children with cancer and their parents

Abstract

In recent years, the intensification of treatment for children with cancer has resulted in a considerable increase in the number of those who are cured. The intensive treatment has, however, led to a number of problems for the children and their families. The aim of this study was to identify children's experience of problems related to their cancer and the disease-effect on the child's life situation. Five children with varying diagnoses and treatment plans and five parents were interviewed separately. The qualitative interview data were compared with a quantitative measurement of problems. The interview data were analyzed by two of the authors according to qualitative analysis processes. Six categories regarding influencing factors on the children's life situation were found: (1) medical treatment and side effects, (2) isolation, (3) togetherness and support, (4) being in the center, (5) feelings and reactions, and (6) quality of care. About half of the variables on the list of problems were mentioned in 1 or more of the 10 interviews. Study findings suggest that health care personnel help children with cancer to reduce their fear of painful and frightening procedures by creating a relationship with the child.