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. 1999 Jan 30;318(7179):295-9.
doi: 10.1136/bmj.318.7179.295.

Current status of long term ventilation of children in the United Kingdom: questionnaire survey

E Jardine  1 , M O'Toole, J Y Paton, C Wallis
Affiliations

Current status of long term ventilation of children in the United Kingdom: questionnaire survey

E Jardine et al. BMJ. .

Abstract

Objectives: To identify the number and current location of children, aged 0 to 16 years, requiring long term ventilation in the United Kingdom, and to establish their underlying diagnoses and ventilatory needs.

Design: Postal questionnaires sent to consultant respiratory paediatricians and all lead clinicians of intensive care and special care baby units in the United Kingdom.

Subjects: All children in the United Kingdom who, when medically stable, continue to need a mechanical aid for breathing.

Results: 141 children requiring long term ventilation were identified from the initial questionnaire. Detailed information was then obtained on 136 children from 30 units. Thirty three children (24%) required continuous positive pressure ventilation by tracheostomy over 24 hours, and 103 received ventilation when asleep by a non-invasive mask (n=62; 46%), tracheostomy (n=32; 24%), or negative pressure ventilation (n=9; 7%). Underlying conditions included neuromuscular disease (n=62; 46%), congenital central hypoventilation syndrome (n=18; 13%), spinal injury (n=16; 12%), craniofacial syndromes (n=9; 7%), bronchopulmonary dysplasia (n=6; 4%), and others (n=25; 18%). 93 children were cared for at home. 43 children remained in hospital because of home circumstances, inadequate funding, or lack of provision of home carers. 96 children were of school age and 43 were attending mainstream school.

Conclusions: A significant increase in the number of children requiring long term ventilation in the United Kingdom has occurred over the past decade. Contributing factors include improved technology, developments in paediatric non-invasive ventilatory support, and a change in attitude towards home care. Successful discharge home and return to school is occurring even for severely disabled patients. Funding and home carers are common obstacles to discharge.

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Figures

Figure
Figure
Geographical distribution of 136 children requiring long term ventilation in the United Kingdom
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References

    1. Fraser J, Henrichsen T, Mok Q, Tasker R. Prolonged mechanical ventilation as a consequence of acute illness. Arch Dis Child. 1998;78:253–256. - PMC - PubMed
    1. Simonds AK. From intensive care unit to home discharge in the 24 hour ventilator-dependent patient. Eur Respir Mon. 1998;8:364–379.
    1. Fraser J, Mok Q, Tasker R. Survey of occupancy of paediatric intensive care units by children who are dependent on ventilators. BMJ. 1997;315:347–348. - PMC - PubMed
    1. Davies RH, Harvey I, Newton-John H, Ward TA. Home ventilation of a child with motor and sensory neuropathy. BMJ. 1996;313:153–155. - PMC - PubMed
    1. Frates RC, Splaingard ML, Smith EO, Harrison GM. Outcome of home mechanical ventilation. J Pediatr. 1985;106:850–856. - PubMed

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