Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation

Search Page

Filters

My Custom Filters

Edit custom filters

Publication date

Text availability

Article attribute

Article type

Additional filters

Article Language

Species

Sex

Age

Other

Search Results

102 results

Filters applied: . Clear all
Results are displayed in a computed author sort order. The Publication Date timeline is not available.
Page 1
Differential Item Functioning on the Patient Health Questionnaire 8 by Disease Subtype, Language, Sex, and Age Among People With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Hu S, Carrier ME, Geoffroy MC, Golberg M, Kwakkenbos L, Bartlett SJ, Fortuné C, Gietzen A, Gottesman K, Guillot G, Hummers LK, Lawrie-Jones A, Malcarne VL, Richard M, Sauvé M, Mouthon L, Benedetti A, Thombs BD; SPIN Investigators. Hu S, et al. Arthritis Care Res (Hoboken). 2026 Jan 20. doi: 10.1002/acr.70041. Online ahead of print. Arthritis Care Res (Hoboken). 2026. PMID: 41556631
Protocol for a two-arm parallel randomized controlled trial to evaluate patient and researcher co-presentation of research results: the Scleroderma Patient-centered Intervention Network-Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) trial.
Nassar EL, Wurz A, Carrier ME, Golberg M, Adams C, Kwakkenbos L, Hoa S, Benedetti A, Thombs BD; the SPIN Patient Engagement Advisory Team, SPIN-PAIRS Organizational Collaborators, and SPIN Investigators. Nassar EL, et al. Trials. 2025 Nov 12;26(1):493. doi: 10.1186/s13063-025-09256-0. Trials. 2025. PMID: 41225532 Free PMC article.
Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience: the SPIN-CLEAR Trials.
Thombs BD, Adams C, Nassar EL, Carrier ME, Golberg M, Bharthi K, Wurz A, South A, Kwakkenbos L, Hoa S, Rice DB, Guillot G, Lawrie-Jones A, Sauvé M, Bartlett SJ, Fortune C, Gietzen A, Gottesman K, Hudson M, Hummers LK, Malcarne VL, Mayes MD, Richard M, Stempel J, Wojeck RK, Blagrave K, Boruff JT, Cook V, Culos-Reed N, Fröbert O, Gillies K, Granikov V, Hemkens LG, Jimenez EY, Kocher A, Leite C, Lim MAWT, Maltez N, Michalski J, Mieszczak T, Ndosi M, Pope J, Rannou F, Rozee K, Straus SE, Sydes MR, Thabane L, Varga J, Yap T, Zwarenstein M, Mouthon L, Benedetti A; SPIN Investigators. Thombs BD, et al. Trials. 2025 May 8;26(1):149. doi: 10.1186/s13063-025-08846-2. Trials. 2025. PMID: 40340935 Free PMC article.
Evaluation of the Coping Strategies Questionnaire-Revised for fatigue in systemic sclerosis: a Scleroderma Patient-centred Intervention Network (SPIN) cohort study.
Dal Santo C, Golberg M, Carrier ME, Harel D, Kwakkenbos L, Bartlett SJ, Fortuné C, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Richard M, Worron-Sauvé M, Mouthon L, Malcarne VL, Benedetti A, Thombs BD; SPIN Investigators. Dal Santo C, et al. Clin Exp Rheumatol. 2025 Aug;43(8):1455-1464. doi: 10.55563/clinexprheumatol/26zipq. Epub 2025 Mar 10. Clin Exp Rheumatol. 2025. PMID: 40095633 Free article.
Fatigue levels and associated factors in systemic sclerosis: a cross-sectional study of 2385 SPIN Cohort participants.
Kwakkenbos L, Levis B, Henry RS, Virgili-Gervais G, Carrier ME, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Hummers LK, Malcarne VL, Mayes MD, Richard M, Wojeck RK, Worron-Sauvé M, Hudson M, Mouthon L, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network Investigators. Kwakkenbos L, et al. Rheumatology (Oxford). 2025 May 1;64(5):2810-2820. doi: 10.1093/rheumatology/keae570. Rheumatology (Oxford). 2025. PMID: 39447026 Free PMC article.
The association of outdoor temperature and self-reported Raynaud's phenomenon severity among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network Cohort study.
Virgili-Gervais G, Matthews B, Nassar EL, Carrier ME, Kwakkenbos L, Pauling JD, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Lawrie-Jones A, Malcarne VL, Mayes MD, Richard M, Sauvé M, Wojeck RK, Mouthon L, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network investigators. Virgili-Gervais G, et al. Lancet Rheumatol. 2024 Oct;6(10):e684-e692. doi: 10.1016/S2665-9913(24)00189-9. Epub 2024 Aug 28. Lancet Rheumatol. 2024. PMID: 39216493
Experiences of telehealth during and after the COVID-19 pandemic and preferences for future care of people with systemic sclerosis: a cross-sectional study.
Nassar EL, Virgili-Gervais G, Carrier ME, Kwakkenbos L, Henry RS, Hu S, Provencher S, Golberg M, Bartlett SJ, Mouthon L, Patten SB, Varga J, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 Patient Advisory Team, on behalf of the SPIN Investigators. Nassar EL, et al. Lancet Rheumatol. 2024 Oct;6(10):e660-e663. doi: 10.1016/S2665-9913(24)00166-8. Epub 2024 Jun 26. Lancet Rheumatol. 2024. PMID: 38944052 No abstract available.
Minimal Detectable Changes of the Health Assessment Questionnaire-Disability Index, Patient-Reported Outcomes Measurement Information System-29 Profile Version 2.0 Domains, and Patient Health Questionnaire-8 in People With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Cross-Sectional Study.
Alkan A, Carrier ME, Henry RS, Kwakkenbos L, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Hudson M, Hummers LK, Malcarne VL, Mayes MD, Mouthon L, Richard M, Wojeck RK, Worron-Sauvé M, Benedetti A, Thombs BD; Scleroderma Patient‐Centered Intervention Network Investigators. Alkan A, et al. Arthritis Care Res (Hoboken). 2024 Nov;76(11):1549-1557. doi: 10.1002/acr.25397. Epub 2024 Aug 27. Arthritis Care Res (Hoboken). 2024. PMID: 38932481
Factors associated with physical function among people with systemic sclerosis: a SPIN cohort cross-sectional study.
Dal Santo T, Rice DB, Carrier ME, Virgili-Gervais G, Levis B, Kwakkenbos L, Golberg M, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Malcarne VL, Mayes MD, Mouthon L, Richard M, Sauvé M, Wojeck RK, Geoffroy MC, Benedetti A, Thombs BD; SPIN Investigators. Dal Santo T, et al. Rheumatology (Oxford). 2024 Oct 1;63(10):2660-2669. doi: 10.1093/rheumatology/keae162. Rheumatology (Oxford). 2024. PMID: 38471107 Free PMC article.
Factors associated with satisfaction with social roles and activities among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study.
Dal Santo T, Rice D, Carrier ME, Virgili-Gervais G, Levis B, Kwakkenbos L, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Malcarne V, Mayes M, Mouthon L, Richard M, Sauve M, Wojeck R, Geoffroy MC, Benedetti A, Thombs B; SPIN investigators. Dal Santo T, et al. RMD Open. 2024 Feb 29;10(1):e003876. doi: 10.1136/rmdopen-2023-003876. RMD Open. 2024. PMID: 38428973 Free PMC article.
102 results