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Health-related quality of life in children with von Willebrand disease: results of the French real-life Willebrand Study Health-related Quality of Life study.
Goudemand J, Susen S, Berger C, Bayart S, Chambost H, Genre-Volot F, Desprez D, Claeyssens S, Pan-Petesch B, Harroche A, Ardillon L, Veyradier A, Barthez-Toullec M, Marin G, Lagrue E, André-Bonnet MH, Repessé Y, Borel-Derlon A, von Mackensen S. Goudemand J, et al. Among authors: genre volot f. J Thromb Haemost. 2025 Sep;23(9):2736-2750. doi: 10.1016/j.jtha.2025.05.017. Epub 2025 May 27. J Thromb Haemost. 2025. PMID: 40436273 Free article.
Navigating the Transition From Adolescence to Adulthood Among Young People With Severe Haemophilia: The Qualitative Phase of the TRANSHEMO Project.
Roques MA, Rosso-Delsemme N, Celli A, Nguyen NAT, Postzich M, Castet S, Huguenin Y, Harroche A, Lienhart A, Meunier S, Biron-Andréani C, Rousseau F, d'Oiron R, Repessé Y, Tabélé C, Beltran Anzola A, Sannié T, Giraud N, Auquier P, Chambost H, Resseguier N; TRANSHEMO Study Group. Roques MA, et al. Haemophilia. 2025 Nov;31(6):1197-1208. doi: 10.1111/hae.70101. Epub 2025 Sep 11. Haemophilia. 2025. PMID: 40932388 Free PMC article.
Impact of Systematic Joint Examination (Ultrasound, Functional and Physical) on Treatment Management Decisions in Patients With Haemophilia A in France: Final Data From the Prospective, Observational A-MOVE Study.
Drillaud N, Barbay V, Valentin JB, Jailler R, Lebreton A, Pan-Petesch B, Marie Castet S, Frotscher B, Frenzel L, Jousse-Joulin S, Chambost H, Alenäs M, Fusser M, Gandossi C, Zidi M, Mahdout O, Repessé Y; A‐MOVE study group. Drillaud N, et al. Haemophilia. 2025 Mar;31(2):239-246. doi: 10.1111/hae.70012. Epub 2025 Feb 24. Haemophilia. 2025. PMID: 39994986 Free PMC article.
Psychometric Validation of the Hemophilia Functional Ability Scoring Tool (Hemo-FAST).
Barbay V, Repessé Y, Desprez D, Drillaud N, Frotscher B, Piel-Julian ML, Castet S, Genre-Volot F, Tardy B, Harroche A, Gandossi C, Zidi M, Carlsson S, Kragh N, Bednar E, Négrier C, Lebreton A. Barbay V, et al. Among authors: genre volot f. Thromb Haemost. 2025 Oct;125(10):960-971. doi: 10.1055/a-2501-1369. Epub 2025 Jan 21. Thromb Haemost. 2025. PMID: 39837553 Free PMC article.
Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): A multicentric French national observational cross-sectional study based on the FranceCoag registry.
Nguyen NAT, Auquier P, Beltran Anzola A, Harroche A, Castet S, Huguenin Y, Meunier S, Repesse Y, D'Oiron R, Rauch A, Desprez D, Spiegel A, Chamouni P, Schneider P, Baumstarck K, Boucekine M, Tabele C, Viprey M, Leroy T, Roques MA, Sannie T, Giraud N, Chambost H, Resseguier N; TRANSHEMO Study group. Nguyen NAT, et al. Haemophilia. 2023 Sep;29(5):1202-1218. doi: 10.1111/hae.14841. Epub 2023 Aug 12. Haemophilia. 2023. PMID: 37572328
Real-world usage and effectiveness of recombinant factor IX Fc in haemophilia B from the B-SURE study in France.
Chambost H, Repessé Y, Genre-Volot F, Desprez D, Castet SM, Vanderbecken S, Zidi M, Gandossi C, Nüesch E, Palmborg H, Santagostino E; B-SURE Study Group. Chambost H, et al. Among authors: genre volot f. Ther Adv Hematol. 2025 Jan 26;16:20406207241311535. doi: 10.1177/20406207241311535. eCollection 2025. Ther Adv Hematol. 2025. PMID: 39872008 Free PMC article.