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Page 1
The association of outdoor temperature and self-reported Raynaud's phenomenon severity among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network Cohort study.
Virgili-Gervais G, Matthews B, Nassar EL, Carrier ME, Kwakkenbos L, Pauling JD, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Lawrie-Jones A, Malcarne VL, Mayes MD, Richard M, Sauvé M, Wojeck RK, Mouthon L, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network investigators. Virgili-Gervais G, et al. Lancet Rheumatol. 2024 Oct;6(10):e684-e692. doi: 10.1016/S2665-9913(24)00189-9. Epub 2024 Aug 28. Lancet Rheumatol. 2024. PMID: 39216493
Fatigue levels and associated factors in systemic sclerosis: a cross-sectional study of 2385 SPIN Cohort participants.
Kwakkenbos L, Levis B, Henry RS, Virgili-Gervais G, Carrier ME, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Hummers LK, Malcarne VL, Mayes MD, Richard M, Wojeck RK, Worron-Sauvé M, Hudson M, Mouthon L, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network Investigators. Kwakkenbos L, et al. Rheumatology (Oxford). 2025 May 1;64(5):2810-2820. doi: 10.1093/rheumatology/keae570. Rheumatology (Oxford). 2025. PMID: 39447026 Free PMC article.
Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience: the SPIN-CLEAR Trials.
Thombs BD, Adams C, Nassar EL, Carrier ME, Golberg M, Bharthi K, Wurz A, South A, Kwakkenbos L, Hoa S, Rice DB, Guillot G, Lawrie-Jones A, Sauvé M, Bartlett SJ, Fortune C, Gietzen A, Gottesman K, Hudson M, Hummers LK, Malcarne VL, Mayes MD, Richard M, Stempel J, Wojeck RK, Blagrave K, Boruff JT, Cook V, Culos-Reed N, Fröbert O, Gillies K, Granikov V, Hemkens LG, Jimenez EY, Kocher A, Leite C, Lim MAWT, Maltez N, Michalski J, Mieszczak T, Ndosi M, Pope J, Rannou F, Rozee K, Straus SE, Sydes MR, Thabane L, Varga J, Yap T, Zwarenstein M, Mouthon L, Benedetti A; SPIN Investigators. Thombs BD, et al. Trials. 2025 May 8;26(1):149. doi: 10.1186/s13063-025-08846-2. Trials. 2025. PMID: 40340935 Free PMC article.
Evaluation of the Coping Strategies Questionnaire-Revised for fatigue in systemic sclerosis: a Scleroderma Patient-centred Intervention Network (SPIN) cohort study.
Dal Santo C, Golberg M, Carrier ME, Harel D, Kwakkenbos L, Bartlett SJ, Fortuné C, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Richard M, Worron-Sauvé M, Mouthon L, Malcarne VL, Benedetti A, Thombs BD; SPIN Investigators. Dal Santo C, et al. Clin Exp Rheumatol. 2025 Aug;43(8):1455-1464. doi: 10.55563/clinexprheumatol/26zipq. Epub 2025 Mar 10. Clin Exp Rheumatol. 2025. PMID: 40095633 Free article.
Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Neyer MA, Henry RS, Carrier ME, Kwakkenbos L, Wojeck RK, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Nielson WR, Richard M, Worron-Sauvé M, Harel D, Malcarne VL, Bartlett SJ, Thombs BD; SPIN Investigators. Neyer MA, et al. Arthritis Care Res (Hoboken). 2023 Nov;75(11):2369-2378. doi: 10.1002/acr.25139. Epub 2023 Jun 7. Arthritis Care Res (Hoboken). 2023. PMID: 37128826
Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients.
Thombs BD, Kwakkenbos L, Carrier ME, Bourgeault A, Tao L, Harb S, Gagarine M, Rice D, Bustamante L, Ellis K, Duchek D, Wu Y, Bhandari PM, Neupane D, Carboni-Jiménez A, Henry RS, Krishnan A, Sun Y, Levis B, He C, Turner KA, Benedetti A, Culos-Reed N, El-Baalbaki G, Hebblethwaite S, Bartlett SJ, Dyas L, Patten S, Varga J; Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 Patient Advisory Team; SPIN Investigators. Thombs BD, et al. J Psychosom Res. 2020 Aug;135:110132. doi: 10.1016/j.jpsychores.2020.110132. Epub 2020 May 14. J Psychosom Res. 2020. PMID: 32521358 Free PMC article. Clinical Trial.
Prediction of damage trajectories in systemic sclerosis using group-based trajectory modelling.
Baron M, Barbacki A, Man A, de Vries-Bouwstra JK, Johnson D, Stevens W, Osman M, Wang M, Zhang Y, Sahhar J, Ngian GS, Proudman S, Nikpour M; Australian Scleroderma Interest Group and the Canadian Scleroderma Research Group. Baron M, et al. Rheumatology (Oxford). 2023 Sep 1;62(9):3059-3066. doi: 10.1093/rheumatology/kead002. Rheumatology (Oxford). 2023. PMID: 36625513 Free PMC article.
Mental health symptoms in scleroderma during COVID-19: a Scleroderma Patient-centred Intervention Network (SPIN) cohort longitudinal study.
Henry RS, Kwakkenbos L, Carrier ME, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN COVID-19 Patient Advisory Team for the SPIN Investigators. Henry RS, et al. Clin Exp Rheumatol. 2023 Aug;41(8):1639-1643. doi: 10.55563/clinexprheumatol/cca0xv. Epub 2023 Apr 19. Clin Exp Rheumatol. 2023. PMID: 37083160 Free article.
46 results