Databases for Congenital Heart Defect Public Health Studies Across the Lifespan

Tiffany J Riehle-Colarusso¹, Lisa Bergersen², Craig S Broberg³, Cynthia H Cassell⁴, Darryl T Gray⁵, Scott D Grosse⁶, Jeffrey P Jacobs^{7

8}, Marshall L Jacobs^{7

8}, Russell S Kirby⁹, Lazaros Kochilas¹⁰, Asha Krishnaswamy⁴, Arianne Marelli¹¹, Sara K Pasquali¹², Thalia Wood¹³, Matthew E Oster^{4

10}; Congenital Heart Public Health Consortium

Collaborators, Affiliations

Collaborators

Congenital Heart Public Health Consortium:
Ginnie Lee Abarbanell, Faith Adams, Steven W Allen, Sydney Allen, Anand Ambrose, Carl Lewis Backer, Andrea Baer, Carissa Marie Baker-Smith, Mona Barmash, Amy Basken, Cassandra Bates, Sarosh Percy Batlivala, Robert H Beekman, John William Belmont, Joshua Benke, Stuart Berger, J R Bockerstette, Jeffrey R Boris, Lorenzo Botto, Jackie Boucher, Dana Brock Hageman, Cheryl Brosig Soto, Kristin Marie Burns, Lenore Cameron, Robert M Campbell, Steven E Colan, Lynn Colegrove, Christina Coleman, Angie Colson, Adolfo Correa, Pamela Costa, Chris Couser, Melissa Lynnn Crenshaw, Tessa Crume, Rachel Daskalov, Mark D Del Monte, Lindsay DeSantis, Kaitlin Doherty, Kenneth Dooley, Charles Wes Duke, Pirooz Eghtesady, Saiza Elayda, Alison Ellison, Tim Elsner, Cori Erntz, Michelle Z Esquivel, Bethany Evans, Lloyd Robert Feit, Marcia Feldkamp, William Foley, Elyse Foster, Wayne Franklin, Bridget Freeley, Frank M Galioto, Mary George, Michael H Gewitz, Katja Michelle Gist, Thomas Glenn, Melissa Jill Glidewell, Lorraine A Gore, Johanna Gray, Hannah Green, Scott D Grosse, Michelle Z Gurvitz, Sonia Handa, Melissa Harvey, Emilie Heath, Danielle Hile, John Smith Hokanson, Margaret Peggy Honein, Marius M Hubbell, Jeff Hudson, Kelly Huhn, Dawn Ilardi, Dawn C Jacobs, Robert Douglas Benjamin Jaquiss, Kathy J Jenkins, Anitha John, Patrick Johnson, Shakila Johnson, Emily Jones, Antonios P Jossif, Jonathan Ross Kaltman, David Kasnic, Alex R Kemper, Natalie Kenny, Paul Khairy, Valerie King, Donna Knapp, Daisuke Kobayashi, Adrienne Kovacs, James Kucik, Karen S Kuehl, Alexandra Kuznetsov, Scott Leezer, Jodi Lemacks, Patty Libby, Paul H Lipkin, Michele Ann Lloyd-Puryear, Keila Natilde Lopez, Nicolas L Madsen, Cara Mai, Monica Mann, Bradley Marino, Gerard Robert Martin, G Paul Matherne, Phillip Mauller, Susan May, Edward R B McCabe, Nancy McCabe, Michelle McCardle, Ty McCathran, Amy McCathran, Michael E McConnell, Kristine Brite McCormick, Eric Melsom, William Kelly Milionis, Paula Miller, Erika Miller, Stephanie Mitchell, Cynthia A Moore, Laura Morris, Angela Murray, Kathleen Mussatto, Steven R Neish, Sue Nelson, Jane W Newburger, Jeremy Nicolarsen, Autumn Niggles, Jacqueline Anne Noonan, Gail Ober, Lori O'Keefe, Marc Overcash, Jennifer Page, Matthew Vaughn Park, Mehul D Patel, Jasmin Patel, Gail Denise Pearson, Cindy Pellegrini, Corrie Pierce, Nelangi M Pinto, Kara Polen, Jose Alcides Quinones, Carol Raimondi, Pat Richter, Michelle Rintamaki, Elisa Robles, Geoffrey L Rosenthal, Grahame Rush, Laura Russell, Annamarie Saarinen, Craig Andrew Sable, Joel Saltz, Terri Schaefer, Kathryn Schubert, Vida Schwartz, Stuart K Shapira, Kathleen Sheehan, Brenda Silverman, Regina Simeone, Juanita Smith, Kimberly E Smith, Kristina Smith, Marci Sontag, Shubhika Srivastava, Corrie Stassen, Corey Stiver, Kathryn Taubert, Judy Thibadeau, John P Thomas, Dena Thomas, Vivian Baldassari Thorne, Linda Tiernan, Susan Timmins, Colby Tiner, Natalie Torentinos, Glenn Tringali, James S Tweddell, Lisa M Vasquez, Amy Verstappen, Janice Ware, Caron Watkins, Catherine L Webb, Ellen Weiss, Marina Weiss, Gil Wernovsky, Gretchen Whitehurst, Herbert Whitley, Jennifer Witten, Austin Henry Wong, Matthew Wright, Robert Wynbrant, Bistra Zheleva

Affiliations

¹ Division of Congenital and Developmental Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA tcolarusso@cdc.gov.
² Department of Cardiology, Harvard Medical School, Children's Hospital of Boston, MA.
³ Adult Congenital Heart Program, Knight Cardiovascular Institute, Oregon Health and Science University, Portland, OR.
⁴ Division of Congenital and Developmental Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA.
⁵ Center for Quality Improvement and Patient Safety, Agency for Healthcare Research and Quality, Rockville, MD.
⁶ Office of the Director, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA.
⁷ Division of Cardiovascular Surgery, Department of Surgery, Johns Hopkins All Children's Heart Institute, Johns Hopkins All Children's Hospital and Florida Hospital for Children, St. Petersburg, Tampa, and Orlando, FL.
⁸ Division of Cardiac Surgery, Department of Surgery, Johns Hopkins University, Baltimore, MD.
⁹ Department of Community and Family Health, College of Public Health, University of South Florida, Tampa, FL.
¹⁰ Children's Healthcare of Atlanta, Emory University School of Medicine, Atlanta, GA.
¹¹ McGill Adult Unit for Congenital Heart Disease, Montreal, Québec, Canada.
¹² Department of Pediatrics and Communicable Diseases, University of Michigan C.S. Mott Children's Hospital, Ann Arbor, MI.
¹³ Association of Public Health Laboratories, Silver Spring, MD.

PMID: 27912209
PMCID: PMC5210337
DOI: 10.1161/JAHA.116.004148

Review

Databases for Congenital Heart Defect Public Health Studies Across the Lifespan

Tiffany J Riehle-Colarusso et al. J Am Heart Assoc. 2016.

. 2016 Oct 26;5(11):e004148.

doi: 10.1161/JAHA.116.004148.

Authors

Collaborators

Congenital Heart Public Health Consortium:
Ginnie Lee Abarbanell, Faith Adams, Steven W Allen, Sydney Allen, Anand Ambrose, Carl Lewis Backer, Andrea Baer, Carissa Marie Baker-Smith, Mona Barmash, Amy Basken, Cassandra Bates, Sarosh Percy Batlivala, Robert H Beekman, John William Belmont, Joshua Benke, Stuart Berger, J R Bockerstette, Jeffrey R Boris, Lorenzo Botto, Jackie Boucher, Dana Brock Hageman, Cheryl Brosig Soto, Kristin Marie Burns, Lenore Cameron, Robert M Campbell, Steven E Colan, Lynn Colegrove, Christina Coleman, Angie Colson, Adolfo Correa, Pamela Costa, Chris Couser, Melissa Lynnn Crenshaw, Tessa Crume, Rachel Daskalov, Mark D Del Monte, Lindsay DeSantis, Kaitlin Doherty, Kenneth Dooley, Charles Wes Duke, Pirooz Eghtesady, Saiza Elayda, Alison Ellison, Tim Elsner, Cori Erntz, Michelle Z Esquivel, Bethany Evans, Lloyd Robert Feit, Marcia Feldkamp, William Foley, Elyse Foster, Wayne Franklin, Bridget Freeley, Frank M Galioto, Mary George, Michael H Gewitz, Katja Michelle Gist, Thomas Glenn, Melissa Jill Glidewell, Lorraine A Gore, Johanna Gray, Hannah Green, Scott D Grosse, Michelle Z Gurvitz, Sonia Handa, Melissa Harvey, Emilie Heath, Danielle Hile, John Smith Hokanson, Margaret Peggy Honein, Marius M Hubbell, Jeff Hudson, Kelly Huhn, Dawn Ilardi, Dawn C Jacobs, Robert Douglas Benjamin Jaquiss, Kathy J Jenkins, Anitha John, Patrick Johnson, Shakila Johnson, Emily Jones, Antonios P Jossif, Jonathan Ross Kaltman, David Kasnic, Alex R Kemper, Natalie Kenny, Paul Khairy, Valerie King, Donna Knapp, Daisuke Kobayashi, Adrienne Kovacs, James Kucik, Karen S Kuehl, Alexandra Kuznetsov, Scott Leezer, Jodi Lemacks, Patty Libby, Paul H Lipkin, Michele Ann Lloyd-Puryear, Keila Natilde Lopez, Nicolas L Madsen, Cara Mai, Monica Mann, Bradley Marino, Gerard Robert Martin, G Paul Matherne, Phillip Mauller, Susan May, Edward R B McCabe, Nancy McCabe, Michelle McCardle, Ty McCathran, Amy McCathran, Michael E McConnell, Kristine Brite McCormick, Eric Melsom, William Kelly Milionis, Paula Miller, Erika Miller, Stephanie Mitchell, Cynthia A Moore, Laura Morris, Angela Murray, Kathleen Mussatto, Steven R Neish, Sue Nelson, Jane W Newburger, Jeremy Nicolarsen, Autumn Niggles, Jacqueline Anne Noonan, Gail Ober, Lori O'Keefe, Marc Overcash, Jennifer Page, Matthew Vaughn Park, Mehul D Patel, Jasmin Patel, Gail Denise Pearson, Cindy Pellegrini, Corrie Pierce, Nelangi M Pinto, Kara Polen, Jose Alcides Quinones, Carol Raimondi, Pat Richter, Michelle Rintamaki, Elisa Robles, Geoffrey L Rosenthal, Grahame Rush, Laura Russell, Annamarie Saarinen, Craig Andrew Sable, Joel Saltz, Terri Schaefer, Kathryn Schubert, Vida Schwartz, Stuart K Shapira, Kathleen Sheehan, Brenda Silverman, Regina Simeone, Juanita Smith, Kimberly E Smith, Kristina Smith, Marci Sontag, Shubhika Srivastava, Corrie Stassen, Corey Stiver, Kathryn Taubert, Judy Thibadeau, John P Thomas, Dena Thomas, Vivian Baldassari Thorne, Linda Tiernan, Susan Timmins, Colby Tiner, Natalie Torentinos, Glenn Tringali, James S Tweddell, Lisa M Vasquez, Amy Verstappen, Janice Ware, Caron Watkins, Catherine L Webb, Ellen Weiss, Marina Weiss, Gil Wernovsky, Gretchen Whitehurst, Herbert Whitley, Jennifer Witten, Austin Henry Wong, Matthew Wright, Robert Wynbrant, Bistra Zheleva

Affiliations

¹ Division of Congenital and Developmental Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA tcolarusso@cdc.gov.
² Department of Cardiology, Harvard Medical School, Children's Hospital of Boston, MA.
³ Adult Congenital Heart Program, Knight Cardiovascular Institute, Oregon Health and Science University, Portland, OR.
⁴ Division of Congenital and Developmental Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA.
⁵ Center for Quality Improvement and Patient Safety, Agency for Healthcare Research and Quality, Rockville, MD.
⁶ Office of the Director, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA.
⁷ Division of Cardiovascular Surgery, Department of Surgery, Johns Hopkins All Children's Heart Institute, Johns Hopkins All Children's Hospital and Florida Hospital for Children, St. Petersburg, Tampa, and Orlando, FL.
⁸ Division of Cardiac Surgery, Department of Surgery, Johns Hopkins University, Baltimore, MD.
⁹ Department of Community and Family Health, College of Public Health, University of South Florida, Tampa, FL.
¹⁰ Children's Healthcare of Atlanta, Emory University School of Medicine, Atlanta, GA.
¹¹ McGill Adult Unit for Congenital Heart Disease, Montreal, Québec, Canada.
¹² Department of Pediatrics and Communicable Diseases, University of Michigan C.S. Mott Children's Hospital, Ann Arbor, MI.
¹³ Association of Public Health Laboratories, Silver Spring, MD.

PMID: 27912209
PMCID: PMC5210337
DOI: 10.1161/JAHA.116.004148

No abstract available

Keywords: congenital heart defects; databases; public health science.

PubMed Disclaimer

References

1. Oster ME, Riehle‐Colarusso T, Simeone RM, Gurvitz M, Kaltman JR, McConnell M, Rosenthal GL, Honein MA. Public health science agenda for congenital heart defects: report from a Centers for Disease Control and Prevention experts meeting. J Am Heart Assoc. 2013;2:e000256 doi: . - DOI - PMC - PubMed
1. The Congenital Heart Public Health Consortium . Available at: http://www.chphc.org. Accessed October 1, 2016.
1. Riley GF. Administrative and claims records as sources of health care cost data. Med Care. 2009;47:S51–S55. - PubMed
1. Agency for Health Research and Quality . HCUP Databases—State Inpatient Databases Overview. 2015. Available at: www.hcup-us.ahrq.gov/sidoverview.jsp. Accessed October 1, 2016.
1. Boulet LS, Grosse SD, Riehle‐Colarusso T, Correa A. Health care costs of congenital heart defects In: Wyszynski DF, Correa A, Graham TP, eds. Congenital Heart Defects From Origin to Treatment. New York, New York: Oxford University Press; 2010:493–501.

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Databases for Congenital Heart Defect Public Health Studies Across the Lifespan

Collaborators

Affiliations

Databases for Congenital Heart Defect Public Health Studies Across the Lifespan

Authors

Collaborators

Affiliations

References

Publication types

MeSH terms

Grants and funding

LinkOut - more resources

Full Text Sources

Other Literature Sources

Medical