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83 results

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Page 1
Towards a novel clinical outcome assessment for systemic lupus erythematosus: first outcomes of an international taskforce.
Connelly K, Eades LE, Koelmeyer R, Ayton D, Golder V, Kandane-Rathnayake R, Gregory K, Brunner H, Burke L, Arnaud L, Askanase A, Aranow C, Vital E, Pons-Estel G, Dantata K, Andersen J, Cornet A, Buie J, Sun Y, Tanaka Y, Simon L, Lahoud Y, Friedman A, Kalunian K, Zuraw Q, Werth V, Garces S, Morand EF; TRM-SLE Consortium. Connelly K, et al. Nat Rev Rheumatol. 2023 Sep;19(9):592-602. doi: 10.1038/s41584-023-00993-7. Epub 2023 Jul 11. Nat Rev Rheumatol. 2023. PMID: 37433880 Review.
Systematic review and consensus conceptual model of meaningful symptoms and functional impacts in early Parkinson's Disease.
Mammen JR, Adams JL, Mangrum R, Xiao Y, Barbosa W, Tyo M, Redmond C, Carter C, Cifelli K, Cifelli R, Maruzo H, Meeker J, Shultz G, Thomas C, Bale C, Davies E, Kopil CM, Marras C, Mestre T, Morel T, Simuni T, Stebbins GT, Weintraub D, Stephenson D. Mammen JR, et al. Among authors: morel t. NPJ Parkinsons Dis. 2025 Apr 3;11(1):65. doi: 10.1038/s41531-025-00907-2. NPJ Parkinsons Dis. 2025. PMID: 40175369 Free PMC article.
Domains for inclusion in a novel Treatment Response Measure for Systemic Lupus Erythematosus (TRM-SLE): results of a modified Delphi study.
Connelly K, Koelmeyer R, Ayton D, May J, Gregory K, Eades LE, Barallon R, Kandane-Rathnayake R, Golder V, Anzum A, Mydin M, Akther M, Friedman A, Askanase AD, Aranow C, Vital E, Pons-Estel G, Brunner H, Kalunian K, Dantata K, Arnaud L, Burke L, Simon LS, Zuraw Q, Garces S, Werth VP, Sun YB, Tanaka Y, Lahoud Y, Cornet A, Sorrentino A, Rahman A, Stevens A, Barbey C, Dey ID, Karis E, Bonfá E, Noss E, Smith EMD, Stojan G, Andersen J, Merola JF, Ross Terres JA, Buie J, Maller J, Mosca M, Hojnik M, Dall'Era M, Furie RA, van Vollenhoven RF, Banerjee S, Morand E; TRM-SLE Taskforce Members; Delphi Participants. Connelly K, et al. Lupus Sci Med. 2025 May 6;12(1):e001484. doi: 10.1136/lupus-2024-001484. Lupus Sci Med. 2025. PMID: 40328675 Free PMC article.
SPIRIT-PRO Extension explanation and elaboration: guidelines for inclusion of patient-reported outcomes in protocols of clinical trials.
Calvert M, King M, Mercieca-Bebber R, Aiyegbusi O, Kyte D, Slade A, Chan AW, Basch E, Bell J, Bennett A, Bhatnagar V, Blazeby J, Bottomley A, Brown J, Brundage M, Campbell L, Cappelleri JC, Draper H, Dueck AC, Ells C, Frank L, Golub RM, Griebsch I, Haywood K, Hunn A, King-Kallimanis B, Martin L, Mitchell S, Morel T, Nelson L, Norquist J, O'Connor D, Palmer M, Patrick D, Price G, Regnault A, Retzer A, Revicki D, Scott J, Stephens R, Turner G, Valakas A, Velikova G, von Hildebrand M, Walker A, Wenzel L. Calvert M, et al. Among authors: morel t. BMJ Open. 2021 Jun 30;11(6):e045105. doi: 10.1136/bmjopen-2020-045105. BMJ Open. 2021. PMID: 34193486 Free PMC article. Review.
Ethical Considerations for the Inclusion of Patient-Reported Outcomes in Clinical Research: The PRO Ethics Guidelines.
Cruz Rivera S, Aiyegbusi OL, Ives J, Draper H, Mercieca-Bebber R, Ells C, Hunn A, Scott JA, Fernandez CV, Dickens AP, Anderson N, Bhatnagar V, Bottomley A, Campbell L, Collett C, Collis P, Craig K, Davies H, Golub R, Gosden L, Gnanasakthy A, Haf Davies E, von Hildebrand M, Lord JM, Mahendraratnam N, Miyaji T, Morel T, Monteiro J, Zwisler AO, Peipert JD, Roydhouse J, Stover AM, Wilson R, Yap C, Calvert MJ. Cruz Rivera S, et al. Among authors: morel t. JAMA. 2022 May 17;327(19):1910-1919. doi: 10.1001/jama.2022.6421. JAMA. 2022. PMID: 35579638
Addressing Outcome Measure Variability in Myasthenia Gravis Clinical Trials.
Guptill JT, Benatar M, Granit V, Habib AA, Howard JF Jr, Barnett-Tapia C, Nowak RJ, Lee I, Ruzhansky K, Dimachkie MM, Cutter GR, Kaminski HJ; for MGNet Clinical Trial Outcome Measure Working Group. Guptill JT, et al. Neurology. 2023 Sep 5;101(10):442-451. doi: 10.1212/WNL.0000000000207278. Epub 2023 Apr 19. Neurology. 2023. PMID: 37076302 Free PMC article.
83 results